Nunes Rui
Department of Bioethics of the School of Medicine, University of Oporto, Estrada da Circunvalação 9925, Porto, EU, 4250-150, Portugal.
Med Health Care Philos. 2006;9(1):25-31. doi: 10.1007/s11019-005-2852-9.
It has been argued by some authors that our reaction to deaf parents who choose deafness for their children ought to be compassion, not condemnation. Although I agree with the reasoning proposed I suggest that this practice could be regarded as unethical. In this article, I shall use the term "dysgenic" as a culturally imposed genetic selection not to achieve any improvement of the human person but to select genetic traits that are commonly accepted as a disabling condition by the majority of the social matrix; in short as a handicap. As in eugenics, dysgenics can be achieved in a positive and a negative way. Positive dysgenics intends to increase the overall number of people with a particular genetic trait. Marriage between deaf people or conceiving deaf children through reproductive technology are examples of positive dysgenics. Negative dysgenics can be obtained through careful prenatal or pre-implantation selection and abortion (or discarding) of normal embryos and foetuses. Only deaf children would be allowed to live. If dysgenics is seen as a programmed genetic intervention that undesirably shapes the human condition--like deliberately creating deaf or dwarf people--the professionals involved in reproductive technologies should answer the question if this should be an accepted ethical practice because the basic human right to an open future is violated.
一些作者认为,我们对选择让孩子失聪的失聪父母的反应应该是同情,而非谴责。虽然我认同所提出的推理,但我认为这种做法可能被视为不道德。在本文中,我将使用“不良遗传”一词来指代一种由文化施加的基因选择,其目的不是为了提升人类个体,而是选择被社会大多数人普遍视为致残状况的基因特征;简而言之,就是一种残疾。与优生学一样,不良遗传可以通过积极和消极两种方式实现。积极的不良遗传旨在增加具有特定基因特征的人群总数。聋人之间的婚姻或通过生殖技术孕育聋儿就是积极不良遗传的例子。消极的不良遗传可以通过仔细的产前或植入前筛选以及对正常胚胎和胎儿进行流产(或丢弃)来实现。只允许聋儿存活。如果将不良遗传视为一种对人类状况产生不良影响的计划性基因干预——比如故意制造聋人或侏儒——那么参与生殖技术的专业人员就应该回答这样一个问题,即这是否应该被视为一种可接受的伦理行为,因为这侵犯了人类拥有开放未来的基本权利。