Lane Harlan, Grodin Michael
Kennedy Inst Ethics J. 1997 Sep;7(3):231-51. doi: 10.1353/ken.1997.0024.
This paper examines ethical issues related to medical practices with children and adults who are members of a linguistic and cultural minority known as the DEAF-WORLD. Members of that culture characteristically have hearing parents and are treated by hearing professionals whose values, particularly concerning language, speech, and hearing, are typically quite different from their own. That disparity has long fueled a debate on several ethical issues, most recently the merits of cochlear implant surgery for DEAF children. We explore whether that surgery would be ethical if implants could deliver close to normal hearing for most implanted children, thereby diminishing the ranks of the DEAF-WORLD. The ethical implications of eugenic practices with the DEAF are explored, as are ethical quandaries in parental surrogacy for DEAF children, and their parallels in transracial adoption.
本文探讨了与医疗实践相关的伦理问题,这些医疗实践涉及被称为“聋人世界”的语言和文化少数群体中的儿童和成人。该文化群体的成员通常有听力正常的父母,并且由听力正常的专业人员进行治疗,这些专业人员的价值观,特别是在语言、言语和听力方面,通常与他们自己的价值观有很大不同。这种差异长期以来引发了关于几个伦理问题的争论,最近的争论焦点是为聋儿进行人工耳蜗植入手术的利弊。我们探讨了如果植入物能够为大多数接受植入手术的儿童带来接近正常的听力,从而减少聋人世界的人数,那么这种手术是否符合伦理。文中还探讨了针对聋人的优生学实践的伦理影响,以及为聋儿寻找代孕父母时的伦理困境,以及它们在跨种族收养中的类似情况。