Skinner M W
World Federation of Hemophilia, Washington, DC 20036, USA.
Haemophilia. 2006 Jul;12 Suppl 3:169-73. doi: 10.1111/j.1365-2516.2006.01280.x.
The World Federation of Hemophilia (WFH) has defined a new strategic plan which maps out where the organization is going and what it can do for our members. The plan embraces the vision of Treatment for All; i.e. one day, treatment will be available for all those with inherited bleeding disorders, regardless of where they live. Treatment for All means proper diagnosis, management, and care by a multidisciplinary team of trained specialists. It means safe, effective treatment products are available for all people with inherited bleeding disorders. It means expanding services beyond haemophilia, to those with von Willebrand's disease, rare factor deficiencies, and inherited platelet disorders. Today, more than 75% of the global bleeding disorders community receive either inadequate or no treatment whatsoever. Our mission is to improve treatment where it is limited or does not exist. At the same time, we must sustain the many gains we have achieved thus far. The challenge is immense. Making our vision a reality requires us to be focused and deliberate about the programmes we undertake and the commitments we make. Building on past strategic plans, this plan presents a vision for the continued success of the WFH over the next 3-5 years.
世界血友病联盟（WFH）制定了一项新的战略计划，规划了该组织的发展方向以及可为我们的成员做些什么。该计划秉持“人人皆可治疗”的愿景；也就是说，终有一天，所有遗传性出血性疾病患者，无论身处何地，都能获得治疗。“人人皆可治疗”意味着由训练有素的多学科专家团队进行正确的诊断、管理和护理。这意味着所有遗传性出血性疾病患者都能获得安全、有效的治疗产品。这意味着将服务范围从血友病扩展到血管性血友病、罕见因子缺乏症和遗传性血小板疾病患者。如今，全球超过75%的出血性疾病患者接受的治疗不足或根本没有接受任何治疗。我们的使命是在治疗有限或不存在的地方改善治疗情况。与此同时，我们必须维持迄今所取得的诸多成果。挑战巨大。要将我们的愿景变为现实，要求我们对所开展的项目和做出的承诺保持专注并深思熟虑。基于过去的战略计划，本计划为世界血友病联盟在未来3至5年的持续成功描绘了一幅愿景。
