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世界血友病联盟及其研究

The World Federation of Hemophilia and research.

机构信息

Department of Pathology and Molecular Medicine, Queen's University, Kingston, Canada.

出版信息

Haemophilia. 2012 Jul;18 Suppl 4:24-7. doi: 10.1111/j.1365-2516.2012.02825.x.

Abstract

Until now, the World Federation of Haemophilia (WFH) has focused its energies on the development of initiatives to enhance the clinical care of persons with bleeding disorders around the world. While this objective will still represent the main goal of this organization, there is interest in launching a new program that focuses on international research into the inherited bleeding disorders. This project will begin with the development of a clinical outcomes research competition and will incorporate a complementary research mentorship program.

摘要

迄今为止,世界血友病联盟(WFH)一直致力于制定各项举措,以提高世界各地出血性疾病患者的临床护理水平。虽然这一目标仍然是该组织的主要目标,但该组织有兴趣启动一个新的项目,重点关注遗传性出血性疾病的国际研究。该项目将从开展临床结果研究竞赛开始,并纳入一个补充性的研究指导计划。

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