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慢性病患儿与健康儿童在10至12岁时健康相关生活质量的比较:家长视角

Comparison of health-related quality of life among 10- to 12-year-old children with chronic illnesses and healthy children: the parents' perspective.

作者信息

Svavarsdóttir Erla Kolbrún, Orlygsdóttir Brynja

机构信息

University of Iceland, Faculty of Nursing, Reykjavík.

出版信息

J Sch Nurs. 2006 Jun;22(3):178-85. doi: 10.1177/10598405060220030901.

Abstract

The purpose of this study was to evaluate mothers' and fathers' perception of their child's health-related quality of life (HRQOL) among 10- to 12-year-old Icelandic children with or without chronic health condition or illness. A total of 912 Icelandic parents (510 mothers and 402 fathers) and 480 children (209 boys and 271 girls) participated in the study. The Icelandic fathers of children who visited the school nurse over a period of 1 week perceived HRQOL of their children to be significantly lower than the mothers. A gender difference was found between the parents; mothers perceived their children to have significantly higher school functioning than fathers. Both mothers and fathers of children with chronic health condition/illness perceived their children to have significantly lower HRQOL than did the parents of children without a chronic health condition. The findings underline the importance for school nurses to develop and test interventions for school-age children with chronic health conditions or illnesses.

摘要

本研究旨在评估患有或未患有慢性健康状况或疾病的10至12岁冰岛儿童的父母对其子女健康相关生活质量(HRQOL)的认知。共有912名冰岛父母(510名母亲和402名父亲)以及480名儿童(209名男孩和271名女孩)参与了该研究。在为期1周内看望过学校护士的儿童的冰岛父亲们认为,其子女的健康相关生活质量明显低于母亲们的认知。父母之间存在性别差异;母亲们认为自己孩子的学校功能显著高于父亲们的认知。患有慢性健康状况/疾病的儿童的父母(无论母亲还是父亲)均认为,其子女的健康相关生活质量明显低于没有慢性健康状况的儿童的父母的认知。这些研究结果强调了学校护士为患有慢性健康状况或疾病的学龄儿童制定并测试干预措施的重要性。

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