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癌症患儿初次住院期间的需求:一项观察性研究。

Needs of young children with cancer during their initial hospitalization: an observational study.

作者信息

Björk Maria, Nordström Berit, Hallström Inger

机构信息

Division of Nursing, Department of Health Sciences, Lund University, Lund, Sweden.

出版信息

J Pediatr Oncol Nurs. 2006 Jul-Aug;23(4):210-9. doi: 10.1177/1043454206289737.

Abstract

The aim of this study was to describe young (under the age of 7) children's needs as expressed by their behavior, body language and verbal expression through observations during their initial hospitalization after being diagnosed with cancer. Twelve children under the age of seven were followed during 26 hours with non-participant unstructured observations. Field notes were written after each observation and transcribed into a narrative text, which was analyzed by content analysis at both manifest and latent level. Five themes were identified, of which "need to have the parent close by" was the most prominent. The other themes were "need to play and feel joy," "need for participation in care and treatment," "need for a good relationship with the staff," and "need for physical and emotional satisfaction." The results indicate that the children needed their parents and the parents' presence helped the children to express other needs. Professionals need to support the child and his or her parents so that the parents in their turn can support and alleviate their child's hospitalization and cancer treatment.

摘要

本研究的目的是通过对7岁以下儿童在被诊断患有癌症后首次住院期间的行为、肢体语言和言语表达进行观察,来描述他们的需求。对12名7岁以下儿童进行了26小时的非参与性无结构观察。每次观察后都撰写了现场记录,并转录成叙述性文本,通过显性和隐性层面的内容分析进行分析。确定了五个主题,其中“需要父母在身边”最为突出。其他主题包括“需要玩耍和感受快乐”、“需要参与护理和治疗”、“需要与工作人员建立良好关系”以及“需要身体和情感上的满足”。结果表明,孩子们需要他们的父母,父母的陪伴有助于孩子们表达其他需求。专业人员需要支持孩子及其父母,以便父母能够反过来支持并减轻孩子的住院和癌症治疗负担。

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