癌症患者的在线交流与支持：以关系为中心的设计框架。
Online communication and support for cancer patients: a relationship-centric design framework.
作者信息
Weiss Jacob B, Lorenzi Nancy M
机构信息
Department of Biomedical Informatics, Vanderbilt University, Nashville, TN, USA.
出版信息
AMIA Annu Symp Proc. 2005;2005:799-803.
Abstract
Dealing with a cancer diagnosis and cancer treatment involves communication among clinicians, patients, families, friends and others affected by the illness. The hypothesis of this research is that an informatics system can effectively support the communication needs of cancer patients and their informal caregivers. Two design frameworks for online cancer communication are defined and compared. One is centered primarily on the users' interpersonal relationships, and the other is centered on the clinical data and cancer information. Five types of clinical and supportive relationships were identified and supported by in-depth interviews with cancer patients and their informal caregivers. Focusing the design of an online cancer communication system around the interpersonal relationships of patients and families may be an important step towards designing more effective paradigms for online cancer care and support.
摘要
应对癌症诊断和癌症治疗涉及临床医生、患者、家属、朋友以及其他受该疾病影响的人员之间的沟通。本研究的假设是，一个信息系统能够有效支持癌症患者及其非正式照护者的沟通需求。定义并比较了两种在线癌症沟通的设计框架。一种主要围绕用户的人际关系，另一种则围绕临床数据和癌症信息。通过对癌症患者及其非正式照护者的深入访谈，确定并支持了五种临床和支持性的关系。围绕患者和家属的人际关系来设计在线癌症沟通系统，可能是朝着设计更有效的在线癌症护理和支持模式迈出的重要一步。
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