Skeels Meredith M, Unruh Kenton T, Powell Christopher, Pratt Wanda
Biomedical & Health Informatics, University of Washington.
Proc SIGCHI Conf Hum Factor Comput Syst. 2010 Apr;2010:173-182. doi: 10.1145/1753326.1753353.
Social support is a critical, yet underutilized resource when undergoing cancer care. Underutilization occurs in two conditions: (a) when patients fail to seek out information, material assistance, and emotional support from family and friends or (b) when family and friends fail to meet the individualized needs and preferences of patients. Social networks are most effective when kept up to date on the patient's status, yet updating everyone takes effort that patients cannot always put in. To improve this situation, we describe the results of our participatory design activities with breast cancer patients. During this process, we uncovered the information a social network needs to stay informed as well as a host of barriers to social support that technology could help break down. Our resulting prototype, built using Facebook Connect, includes explicit features to reduce these barriers and thus, promote the healthy outcomes associated with strong social support.
在接受癌症治疗时,社会支持是一种至关重要但未得到充分利用的资源。未充分利用的情况出现在两种情形下:(a) 患者未能向家人和朋友寻求信息、物质援助和情感支持,或者 (b) 家人和朋友未能满足患者的个性化需求和偏好。当社交网络及时了解患者状况时最为有效,但让每个人都了解最新情况需要付出努力,而患者不一定总能做到。为改善这种情况,我们描述了与乳腺癌患者进行的参与式设计活动的结果。在此过程中,我们发现了社交网络为保持了解情况所需的信息,以及一系列技术可帮助消除的社会支持障碍。我们使用Facebook Connect构建的最终原型包含明确的功能,以减少这些障碍,从而促进与强大社会支持相关的健康结果。