Giacaman Rita, Mataria Awad, Nguyen-Gillham Viet, Safieh Rula Abu, Stefanini Angelo, Chatterji Somnath
Institute of Community and Public Health, Birzeit University, West Bank, Occupied Palestinian Territory, Box 154, Ramallah, West Bank, Israel.
Health Policy. 2007 Apr;81(1):68-84. doi: 10.1016/j.healthpol.2006.05.011. Epub 2006 Jun 22.
This study aims to elucidate the concept of quality of life (QOL) in a unique environment characterized by protracted and ongoing conflict, beginning with the utilization of the WHOQOL-Bref as a starting point for discussion. It works to determine important health-related quality of life domains and items within each domain, and evaluate issues pertinent to the Palestinian population's understanding of life quality in the Occupied Palestinian Territory. Focus group discussions (FGD) were conducted with individuals living in the Gaza Strip and Ramallah District of the West Bank. Participants were asked if they understood the term QOL; and about the determinants of their own QOL, using open-ended questions. Participants were then presented with the WHOQOL-Bref questions and requested to assess their relevance and importance in determining their own QOL, and encouraged to suggest additional ones. A total of 150 men and women of various ages and socioeconomic classes participated in 13 FGD. A major finding is the all-encompassing impact of the political context on Palestinians' QOL assessment. The study demonstrates that political freedom, self-determination, participation in democratic processes and feeling involved in political decision-making are considered important contributors to people's QOL. The study raises the option of adding a new domain to the WHOQOL-Bref, allowing the study of its psychometric properties and its relationship to the rest of the instrument. This contribution should be particularly relevant to societies and cultures in conflict-affected zones and locales where violence and insecurity constitute an important part of life. The documentation of QOL, beyond fatal and non-fatal health outcomes, must remain an important objective of all evaluations in order to guide policy and resource allocation decisions directed towards improving peoples' lives in general and their health in particular.
本研究旨在以旷日持久且仍在持续的冲突为独特背景,从将世界卫生组织生活质量简表(WHOQOL - Bref)作为讨论起点入手,阐明生活质量(QOL)的概念。该研究致力于确定与健康相关的重要生活质量领域及每个领域中的项目,并评估与巴勒斯坦民众对巴勒斯坦被占领土生活质量理解相关的问题。研究人员与居住在加沙地带和约旦河西岸拉马拉地区的个人进行了焦点小组讨论(FGD)。通过开放式问题询问参与者是否理解生活质量这一术语,以及他们自身生活质量的决定因素。随后向参与者展示世界卫生组织生活质量简表中的问题,并要求他们评估这些问题在确定自身生活质量方面的相关性和重要性,同时鼓励他们提出其他问题。共有150名不同年龄和社会经济阶层的男性和女性参与了13次焦点小组讨论。一项主要发现是政治背景对巴勒斯坦人生活质量评估具有全方位的影响。该研究表明,政治自由、自决、参与民主进程以及感觉参与政治决策被视为人们生活质量的重要贡献因素。该研究提出了在世界卫生组织生活质量简表中增加一个新领域的选项,以便研究其心理测量特性及其与该量表其他部分的关系。这一贡献对于受冲突影响地区以及暴力和不安全构成生活重要组成部分的地区的社会和文化尤为相关。记录生活质量,除了致命和非致命的健康结果之外,必须始终是所有评估的重要目标,以便指导旨在总体上改善人们生活尤其是其健康状况的政策和资源分配决策。