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焦点小组研究与“患者视角”

Focus group research and "the patient's view".

作者信息

Lehoux Pascale, Poland Blake, Daudelin Genevieve

机构信息

GRIS, Department of Health Administration, University of Montreal, Branch Centre Ville, Montreal, Canada H3C 3J7.

出版信息

Soc Sci Med. 2006 Oct;63(8):2091-104. doi: 10.1016/j.socscimed.2006.05.016. Epub 2006 Jun 23.

Abstract

A clear emphasis on the patient's view is discernible in the health services research literature of the past decades. Such a switch to patients' perspectives has been greatly facilitated by a wider acceptance and use of qualitative methods. In particular, focus groups are often used to uncover the range and depth of experiences of health services users and chronically ill individuals. Although this method contributes to a better understanding of patients' perspectives and practices, a number of analytical considerations have been overlooked. The aim of this paper is to consider how to conceptualise and analyse interactions in focus group research. We argue that focus groups are social spaces in which participants co-construct the "patient's view" by sharing, contesting and acquiring knowledge. Focus groups conducted with home care patients in Quebec, Canada (on antibiotic intravenous therapy, parenteral nutrition, peritoneal dialysis and oxygen therapy) are used to illustrate three interactive processes at work in focus groups: (1) establishing oneself as experienced and knowledgeable; (2) establishing oneself as in search of information and advice; and (3) validating or challenging one another's knowledge claims. We develop an analytical template focused on the subtle dynamics underpinning the various and at times competing claims of patients. This template acknowledges the processes through which participants attribute authority to the claims of others, including the focus group moderator. We find that focus group research does not derive epistemological authority simply from the identity of its participants. Rather, an emerging consensus about what constitutes the patient's view is the result of context-dependent social interactions that need to be scrutinised.

摘要

在过去几十年的卫生服务研究文献中,可以明显看出对患者观点的明确强调。定性方法的更广泛接受和使用极大地推动了这种向患者视角的转变。特别是,焦点小组经常被用来揭示卫生服务使用者和慢性病患者的经历范围和深度。尽管这种方法有助于更好地理解患者的观点和做法,但一些分析上的考虑却被忽视了。本文的目的是思考如何在焦点小组研究中对互动进行概念化和分析。我们认为焦点小组是社会空间,参与者通过分享、争论和获取知识共同构建“患者的观点”。以加拿大魁北克的家庭护理患者为对象进行的焦点小组(关于抗生素静脉治疗、肠外营养、腹膜透析和氧疗)被用来说明焦点小组中起作用的三个互动过程:(1)确立自己是有经验和知识渊博的;(2)确立自己是在寻求信息和建议的;(3)验证或质疑彼此的知识主张。我们开发了一个分析模板,重点关注支撑患者各种有时相互竞争的主张的微妙动态。这个模板承认参与者赋予他人主张(包括焦点小组主持人的主张)权威的过程。我们发现焦点小组研究并非仅仅从其参与者的身份中获得认识论权威。相反,关于什么构成患者观点的新出现的共识是需要仔细审查的依赖于背景的社会互动的结果。

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