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告知创伤性脑损伤和无行为能力的消息。

Breaking the news of traumatic brain injury and incapacities.

作者信息

Lefebvre Hélène, Levert Marie Josée

机构信息

Faculty of Nursing, Unversity of Montreal, Quebec, Canada.

出版信息

Brain Inj. 2006 Jun;20(7):711-8. doi: 10.1080/02699050600744244.

Abstract

PRIMARY OBJECTIVE

This paper presents research results regarding disclosure of traumatic brain injury (TBI) diagnosis and resulting deficits of a study aiming to investigate the experiences of individuals who had sustained a TBI, their families, the physicians and health professionals involved, from the critical care episodes and subsequent rehabilitation.

RESEARCH DESIGN

Semi-structured interviews were conducted with individuals who had sustained a TBI (n = 8) and their families (n = 8) as well as with the health professionals (or service providers) (n = 22) and physicians (n = 9) who provided them care.

MAIN OUTCOMES AND RESULTS

Results revealed that the quality of the disclosure is strongly influenced by the medical uncertainty surrounding the TBI and the difficulties of healthcare professionals in dealing with the family's emotions.

CONCLUSIONS

Delivering bad news is always difficult, but it is possible to make this harrowing experience easier and, in so doing, enhance patient and family resilience.

摘要

主要目标

本文展示了一项关于创伤性脑损伤(TBI)诊断披露以及相关缺陷的研究结果,该研究旨在调查遭受TBI的个体、他们的家人、参与其中的医生和健康专业人员在重症监护阶段及后续康复过程中的经历。

研究设计

对8名遭受TBI的个体及其8名家人,以及为他们提供护理的22名健康专业人员(或服务提供者)和9名医生进行了半结构化访谈。

主要结果

结果显示,披露的质量受到TBI周围医学不确定性以及医疗保健专业人员处理家庭情绪困难的强烈影响。

结论

传达坏消息总是困难的,但有可能让这种痛苦的经历变得更容易,从而增强患者和家庭的恢复力。

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