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高位和中位肛门闭锁:学龄儿童的心理社会后果

High and intermediate imperforate anus: psychosocial consequences among school-aged children.

作者信息

Ojmyr-Joelsson Maria, Nisell Margret, Frenckner Björn, Rydelius Per-Anders, Christensson Kyllike

机构信息

Division of Pediatric Surgery, Q2:03, Astrid Lindgren Children's Hospital, Karolinska University Hospital, SE-171 76 Stockholm, Sweden.

出版信息

J Pediatr Surg. 2006 Jul;41(7):1272-8. doi: 10.1016/j.jpedsurg.2006.03.007.

Abstract

BACKGROUND/PURPOSE: Imperforate anus is an unusual malformation, which, even after surgical intervention, usually entails constipation and fecal incontinence. This study aimed to evaluate ongoing psychosocial effects of this birth defect in school-aged children.

METHODS

Twenty-five children born with high and intermediate imperforate anus participated in the study, along with their parents and classroom teachers. One group of healthy children and 1 group of children with juvenile chronic arthritis, along with their parents, served as controls. Children and parents individually answered a questionnaire devised for this study. Parents filled out the Child Behavior Checklist and the children's teacher filled out the Teacher's Report Form.

RESULTS

According to test results, children with imperforate anus were happy and optimistic. They liked school better and reported better relationships with schoolmates than the other children. The index group reported statistically significantly more frequent constipation. According to parental responses, the imperforate-anus children suffered from fecal incontinence and odor, as well as constipation (P < .001). Index-group parents reported on the Child Behavior Checklist that their children had more emotional and behavioral problems. On the Teacher's Report Form, teachers reported few problems for the same children.

CONCLUSIONS

Patients with imperforate anus did not experience psychosocial impairment despite significant functional problems.

摘要

背景/目的:肛门闭锁是一种罕见的畸形,即使经过手术干预,通常仍会导致便秘和大便失禁。本研究旨在评估这种出生缺陷对学龄儿童持续存在的心理社会影响。

方法

25名患有高位和中位肛门闭锁的儿童及其父母和班级教师参与了研究。一组健康儿童和一组患有青少年慢性关节炎的儿童及其父母作为对照。儿童和父母分别回答了为本研究设计的问卷。父母填写儿童行为检查表,儿童的教师填写教师报告表。

结果

根据测试结果,肛门闭锁患儿快乐且乐观。他们比其他儿童更喜欢学校,并且报告与同学的关系更好。指标组报告便秘的频率在统计学上显著更高。根据父母的回答,肛门闭锁患儿存在大便失禁和异味问题,以及便秘(P <.001)。指标组父母在儿童行为检查表上报告他们的孩子有更多的情绪和行为问题。在教师报告表上,教师报告这些孩子几乎没有问题。

结论

尽管存在明显的功能问题,但肛门闭锁患者并未经历心理社会损害。

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