Nisell Margret, Ojmyr-Joelsson Maria, Frenckner Björn, Rydelius Per-Anders, Christensson Kyllike
Department of Woman and Child Health, Karolinska Institutet, Astrid Lindgren Children's Hospital, Stockholm, Red Cross University College, Stockholm, Sweden.
J Pediatr Health Care. 2008 May-Jun;22(3):166-74. doi: 10.1016/j.pedhc.2007.04.016. Epub 2008 Mar 5.
High and intermediate imperforate anus (IA) is a congenital malformation that may entail psychosocial consequences. The objective was to examine disagreement on psychosocial functioning in reports between children with high and intermediate IA and their mothers.
Twenty-five children with IA and their mothers participated, including two groups for comparison. The responses on 15 psychosocial variables were compared on pair-level, between the mothers and their child, within each group.
Statistically significant differences were found on the psychological variables in all groups, for example, feelings of sadness. For responses related to the social variables, few statistical discrepancies were found, except for the items "bullied" and "teased." Two specific discrepancies emerged in responses from children with IA and their mothers, the child's self-confidence and the mothers' thinking about their child's disability.
It is vital to gather information from both the child and the parents in order to obtain a complete assessment of the child. The course of disagreement can give valuable information for future care, including where to exert extra effort.
高位和中位肛门闭锁(IA)是一种先天性畸形,可能会带来心理社会方面的后果。目的是研究高位和中位IA患儿与其母亲的报告中在心理社会功能方面的分歧。
25名IA患儿及其母亲参与研究,包括两个用于比较的组。在每组中,对母亲及其孩子在15个心理社会变量上的回答进行配对水平比较。
在所有组的心理变量上均发现了具有统计学意义的差异,例如悲伤情绪。对于与社会变量相关的回答,除了“被欺负”和“被取笑”项目外,几乎没有发现统计学上的差异。IA患儿与其母亲的回答中出现了两个特定的差异,即孩子的自信心和母亲对孩子残疾的看法。
为了全面评估孩子,从孩子和父母双方收集信息至关重要。分歧的过程可以为未来的护理提供有价值的信息,包括在哪里需要额外努力。