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评估自闭症和唐氏综合征患儿家长对社会支持的需求。

Assessing need for social support in parents of children with autism and Down syndrome.

作者信息

Siklos Susan, Kerns Kimberly A

机构信息

Department of Psychology, University of Victoria, V8W 3P5, Victoria, BC, Canada.

出版信息

J Autism Dev Disord. 2006 Oct;36(7):921-33. doi: 10.1007/s10803-006-0129-7.

Abstract

Parents of children with autism frequently turn to the service delivery system to access supports designed to help adapt to the challenges of having a child with a life-long impairment. Although studies have suggested various supports and coping strategies that are effective for adapting, few studies have examined parents' own perceptions of needs, and whether parents felt their needs were being met. In the present study the Family Needs Questionnaire (FNQ; Waaland et al., 1993) was modified to address needs for children with developmental disorders. A sample of fifty-six parents of children with autism and a comparison group of thirty-two parents of children with Down syndrome completed the FNQ. The groups did not differ significantly on the number of important needs reported nor the number of important needs being met. However, the two groups differed in the types of supports they most frequently endorsed as Important or Unmet.

摘要

自闭症儿童的家长经常求助于服务提供系统,以获得旨在帮助他们应对养育一名终身残疾儿童所带来挑战的支持。尽管研究提出了各种有效的支持措施和应对策略,但很少有研究考察家长自身对需求的看法,以及家长是否觉得他们的需求得到了满足。在本研究中,对《家庭需求问卷》(FNQ;Waaland等人,1993年)进行了修改,以满足发育障碍儿童的需求。56名自闭症儿童的家长样本和32名唐氏综合征儿童的家长对照组完成了FNQ。两组在报告的重要需求数量或得到满足的重要需求数量上没有显著差异。然而,两组在最常认可为重要或未得到满足的支持类型上存在差异。

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