Centre de Ressource Autisme Languedoc-Roussillon et Centre d'excellence sur l'autisme et les troubles neuro-développementaux, CHU Montpellier, Montpellier, France.
Unité transversale d'éducation du patient (UTEP), CHU Montpellier, Montpellier, France.
J Autism Dev Disord. 2023 Jul;53(7):2798-2805. doi: 10.1007/s10803-022-05499-x. Epub 2022 Apr 20.
Autism spectrum disorder (ASD) has a major impact on caregivers. We aimed to describe caregivers' perceptions concerning their level of knowledge about ASD and their needs to better adapt education and training programs.
This was a descriptive cross-sectional study conducted through a declarative and self-administered survey in France.
1,013 individuals answered the questionnaire in 2020. If most caregivers felt they had sufficient knowledge about ASD, they still expressed a high level of needs regarding acquiring knowledge, identifying available resources, and finding social/emotional support.
This study highlights the high level of needs of caregivers and their expectations of improving their knowledge and skills to help the person with ASD.
自闭症谱系障碍（ASD）对照顾者有重大影响。我们旨在描述照顾者对其 ASD 知识水平的看法，以及他们对更好地调整教育和培训计划的需求。
这是在法国进行的一项描述性横断面研究，通过陈述性和自我管理的调查进行。
2020 年，有 1013 人回答了问卷。尽管大多数照顾者认为他们对 ASD 有足够的了解，但他们在获取知识、识别可用资源以及寻找社会/情感支持方面仍表现出高度的需求。
这项研究强调了照顾者的高度需求，以及他们期望提高知识和技能以帮助 ASD 患者的期望。
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