Biering-Sørensen F, Scheuringer M, Baumberger M, Charlifue S W, Post M W M, Montero F, Kostanjsek N, Stucki G
Clinic for Spinal Cord Injuries, The Neuroscience Centre, Rigshospitalet, Copenhagen University hospital, Copenhagen, Denmark.
Spinal Cord. 2006 Sep;44(9):541-6. doi: 10.1038/sj.sc.3101918.
The objective of this paper is to outline the proposed development process for the ICF Core Sets for Spinal Cord Injury (SCI) and to invite clinical and consumer experts to actively participate in this process. ICF Core Sets are selections of categories of the International Classification of Functioning, Disability and Health (ICF) that are relevant to persons with a specific condition or in a specific setting.
The project is a cooperation between the ICF Research Branch of the World Health Organization (WHO) Collaboration Centre of the Family of International Classifications (DIMDI, Germany), the Classification, Assessment and Terminology (CAT) team and the Disability and Rehabilitation (DAR) team at WHO, the International Spinal Cord Society (ISCoS) and International Society for Physical and Rehabilitation Medicine (ISPRM) and partner institutions across the world. The project will consist of four worldwide studies to be conducted from 2006 to 2007 with a proposed ICF Core Set Consensus Conference to be held in 2007. ICF categories relevant for SCI are to be identified by means of (I) an empirical study, (II) a systematic review of outcomes and measures used in SCI research (III) an expert survey and (IV) focus groups and semistructured interviews with persons with SCI. Consensus about items that have to be part of a Comprehensive and of a Brief ICF Core Set for SCI will be reached in a final ICF Core Set Consensus Conference. Subsequent field testing will be necessary to validate this first version of ICF Core Sets for SCI.
The development of ICF Core Sets is an inclusive and open process. Anyone who wishes to actively participate in this process is invited to contact the project coordinator (Monika.Scheuringer@med.uni-muenchen.de or http://www.icf-research-branch.org/research/spinalcord-injuries.htm). Individuals, institutions and associations can be formally associated as partners of the project.
本文旨在概述脊髓损伤国际功能、残疾和健康分类（ICF）核心组合的拟议开发过程，并邀请临床和消费者专家积极参与该过程。ICF核心组合是从国际功能、残疾和健康分类（ICF）中挑选出的与特定疾病患者或特定环境相关的类别。
该项目由世界卫生组织（WHO）国际分类家族合作中心（德国医学文献与情报研究所）的ICF研究分支、WHO的分类、评估和术语（CAT）团队以及残疾与康复（DAR）团队、国际脊髓学会（ISCoS）、国际物理和康复医学学会（ISPRM）以及世界各地的合作机构合作开展。该项目将在2006年至2007年进行四项全球研究，并拟于2007年召开ICF核心组合共识会议。将通过以下方式确定与脊髓损伤相关的ICF类别：（I）实证研究；（II）对脊髓损伤研究中使用的结果和测量方法进行系统评价；（III）专家调查；（IV）与脊髓损伤患者进行焦点小组讨论和半结构化访谈。在最终的ICF核心组合共识会议上，将就必须纳入脊髓损伤综合ICF核心组合和简要ICF核心组合的项目达成共识。后续需要进行现场测试，以验证脊髓损伤ICF核心组合的首个版本。
ICF核心组合的开发是一个包容和开放的过程。欢迎任何希望积极参与该过程的人联系项目协调员（Monika.Scheuringer@med.uni-muenchen.de或http://www.icf-research-branch.org/research/spinalcord-injuries.htm）。个人、机构和协会可以正式成为该项目的合作伙伴。
