Sengupta S, Pungrassami P, Balthip Q, Strauss R, Kasetjaroen Y, Chongsuvivatwong V, Van Rie A
The University of North Carolina, Department of Social Medicine, Wing D Medical School CB#7240, Chapel Hill, NC 27599, USA.
Int J Tuberc Lung Dis. 2006 Sep;10(9):1008-12.
There is growing recognition that attention to social and behavioral factors in tuberculosis (TB) control needs to complement biomedical emphasis on better drugs, vaccines and new diagnostic tools.
Using qualitative methods, we conducted 10 focus groups and seven individual interviews to explore how TB is perceived or experienced in southern Thailand. Participants included male and female patients with TB, patients with AIDS, TB care providers, family members of patients with TB, religious leaders (Buddhist and Muslim), and unaffected community members.
Responses informed two conceptual frameworks on stigma and social support. The first model dichotomized the meaning of TB into 'good' and 'bad' factors related to social support and stigma, respectively. The second model identified three themes--disease severity, religion, and knowledge of TB--linked to either stigma, social support, or both.
Social support as a facilitator and stigma as a barrier are diametrically opposed concepts that need to inform TB care and treatment. Interventions to reduce stigma and promote social support at the patient, household, community, and health care system levels should be part of future efforts in the control of TB in Thailand.
人们越来越认识到,在结核病控制中关注社会和行为因素需要补充对更好的药物、疫苗和新诊断工具的生物医学重视。
我们采用定性方法,进行了10次焦点小组讨论和7次个人访谈,以探讨泰国南部对结核病的认知或体验。参与者包括男性和女性结核病患者、艾滋病患者、结核病护理提供者、结核病患者的家庭成员、宗教领袖(佛教和穆斯林)以及未受影响的社区成员。
这些回答形成了关于耻辱感和社会支持的两个概念框架。第一个模型将结核病的含义分为分别与社会支持和耻辱感相关的“好”和“坏”因素。第二个模型确定了与耻辱感、社会支持或两者都相关的三个主题——疾病严重程度、宗教和结核病知识。
社会支持作为促进因素和耻辱感作为障碍是截然相反的概念,需要为结核病护理和治疗提供信息。在患者、家庭、社区和医疗保健系统层面减少耻辱感和促进社会支持的干预措施应成为泰国未来结核病控制工作的一部分。