Chiò A, Gauthier A, Vignola A, Calvo A, Ghiglione P, Cavallo E, Terreni A A, Mutani R
Department of Neuroscience, University of Turin, Torino, Italy.
Neurology. 2006 Sep 12;67(5):902-4. doi: 10.1212/01.wnl.0000233840.41688.df.
The authors evaluated the caregiver time for 70 patients with ALS. The mean number of caregivers per patient was 2.0 (SD 1.3). Caregiver time increased with worsening of disability (p = 0.0001). The most time-consuming duties were housekeeping, feeding, and toileting. With worsening of patients' disability, families relied increasingly on paid caregivers. Caregiver time is a hidden cost of ALS care and is a major burden for caregivers.
作者评估了70例肌萎缩侧索硬化症（ALS）患者的照护者时间。每位患者的照护者平均人数为2.0（标准差1.3）。照护者时间随着残疾程度的加重而增加（p = 0.0001）。最耗时的工作是家务、喂食和如厕。随着患者残疾程度的加重，家庭越来越依赖付费照护者。照护者时间是ALS护理的一项隐性成本，也是照护者的一项主要负担。
