Verschuur E M L, Steyerberg E W, Kuipers E J, Essink-Bot M-L, Tran K T C, Van Der Gaast A, Tilanus H W, Siersema P D
Department of Gastroenterology and Hepatology, Erasmus MC University Medical Center Rotterdam, Rotterdam, The Netherlands.
Eur J Cancer Care (Engl). 2006 Sep;15(4):324-32. doi: 10.1111/j.1365-2354.2006.00659.x.
We investigated which problems patients experience after resection for oesophageal cancer and what care they expect, in order to devise a better-tailored follow-up policy. Thirty patients, all within 1 year after surgery, filled in a one-time questionnaire on experienced physical, psychological and social problems and on expected care for these problems. Additionally, a semi-structured interview was performed. Frequencies of experienced problems and expected care over time were analysed. The majority of patients experienced physical problems such as 'early satiety' (97%) and 'fatigue' (84%) after oesophagectomy. In addition, patients often felt depressed (64%), were afraid of metastases (80%) and death (47%). Over time, the frequency of problems such as 'fatigue' (P = 0.035) and 'being dependent' (P = 0.012) decreased. Patients particularly expected professional care for physical issues related to their disease, whereas they often managed psychosocial problems in their own social network. Patients indicated that nurses' involvement during follow-up might improve their possibility to satisfactorily deal with problems. Patients frequently experience physical problems after oesophagectomy, and professional care is expected for these issues. Psychosocial problems are also present, but care is less commonly expected. Nurses' involvement during follow-up could be a way to optimize patients' management after oesophageal cancer surgery.
我们调查了食管癌切除术后患者会遇到哪些问题以及他们期望得到何种护理，以便制定更有针对性的随访政策。30名患者均在术后1年内，填写了一份关于所经历的身体、心理和社会问题以及对这些问题期望得到的护理的一次性问卷。此外，还进行了一次半结构化访谈。分析了随时间推移所经历问题和期望护理的频率。大多数患者在食管切除术后出现了诸如“早饱”（97%）和“疲劳”（84%）等身体问题。此外，患者常感到抑郁（64%），害怕转移（80%）和死亡（47%）。随着时间的推移，“疲劳”（P = 0.035）和“依赖他人”（P = 0.012）等问题的频率有所下降。患者特别期望针对与疾病相关的身体问题获得专业护理，而他们通常在自己的社交网络中处理心理社会问题。患者表示，护士在随访期间的参与可能会提高他们满意应对问题的可能性。食管癌切除术后患者经常出现身体问题，并且期望针对这些问题获得专业护理。心理社会问题也存在，但较少期望得到护理。护士在随访期间的参与可能是优化食管癌手术后患者管理的一种方式。
