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肌萎缩侧索硬化功能评定量表修订版(ALSFRS-R)自填式版本的开发与评估

Development and evaluation of a self-administered version of the ALSFRS-R.

作者信息

Montes J, Levy G, Albert S, Kaufmann P, Buchsbaum R, Gordon P H, Mitsumoto H

机构信息

Eleanor and Lou Gehrig MDA/ALS Research Center, Department of Neurology, College of Physicians and Surgeons, Columbia University, New York, NY 10032.

出版信息

Neurology. 2006 Oct 10;67(7):1294-6. doi: 10.1212/01.wnl.0000238505.22066.fc.

DOI:10.1212/01.wnl.0000238505.22066.fc
PMID:17030772
Abstract

We evaluated the reliability and sensitivity to change over time of a newly developed self-administered version of the ALS functional rating scale-revised (ALSFRS-R) in 60 consecutive patients from an ALS clinic. The self-administered ALSFRS-R showed excellent reliability (intraclass correlation = 0.93, 95% CI: 088 to 0.96) and similar sensitivity to change over time vs the standard evaluator-administered ALSFRS-R.

摘要

我们对来自一家肌萎缩侧索硬化症(ALS)诊所的60例连续患者,评估了新开发的自行填写版修订ALS功能评定量表(ALSFRS-R)随时间变化的可靠性和敏感性。自行填写的ALSFRS-R显示出极佳的可靠性(组内相关系数 = 0.93,95%可信区间:0.88至0.96),并且与标准的评估者填写的ALSFRS-R相比,随时间变化的敏感性相似。

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