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用环境卫生与社区审查委员会补充传统的机构审查委员会。

Supplementing the traditional institutional review board with an environmental health and community review board.

作者信息

Gilbert Steven G

机构信息

Institute of Neurotoxicology and Neurological Disorders, Seattle, Washington 98115, USA.

出版信息

Environ Health Perspect. 2006 Oct;114(10):1626-9. doi: 10.1289/ehp.9005.

Abstract

BACKGROUND

Community-based research often involves additional ethical, legal, and social considerations beyond those of the specific individuals involved in the study. The traditional institutional review board (IRB) typically focuses on protecting the rights and ensuring the safety of the individuals involved. For projects involving community members, IRBs should be more sensitive to issues related to the broader community concerns.

OBJECTIVES

The objective of this article is to discuss the concept of community-based participatory research and the shortcomings of the traditional IRBs in dealing with ethical issues associated with broader community concerns such as implications for family members, neighborhood groups, and local businesses. I examine the rationale and benefits for expanding the roles and responsibilities of review boards related to community-based issues.

DISCUSSION

I propose the development of environmental health and community review boards (EHCRBs) that combine the fundamental responsibilities and ethical concept of the traditional review boards with an expanded ethical construct of dignity, veracity, sustainability, and justice, with an added emphasis on community.

CONCLUSIONS

Only by acknowledging the needs of and working with the community can we ensure ethically based and socially responsible research. An EHCRB will allow researchers and community members to more fully address their mutual interest in conducting scientific, ethical, and socially responsible research.

摘要

背景

基于社区的研究通常涉及超出研究中特定个体所涉及的额外伦理、法律和社会考量。传统的机构审查委员会(IRB)通常专注于保护相关个体的权利并确保其安全。对于涉及社区成员的项目,IRB应该对与更广泛社区关注相关的问题更加敏感。

目的

本文的目的是讨论基于社区的参与性研究的概念以及传统IRB在处理与更广泛社区关注相关的伦理问题(如对家庭成员、邻里团体和当地企业的影响)方面的缺点。我探讨了扩大审查委员会在基于社区问题上的角色和责任的基本原理和益处。

讨论

我提议发展环境卫生与社区审查委员会(EHCRB),它将传统审查委员会的基本责任和伦理概念与尊严、真实性、可持续性和正义的扩展伦理架构相结合,并特别强调社区。

结论

只有承认社区的需求并与社区合作,我们才能确保基于伦理且对社会负责的研究。一个EHCRB将使研究人员和社区成员能够更充分地处理他们在开展科学、伦理和对社会负责的研究方面的共同利益。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/3024/1626437/ff14a35462c5/ehp0114-001626f1.jpg

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