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感染艾滋病毒/艾滋病女性所感受到的和实际遭遇的污名经历中的连续性与非连续性

Continuities and discontinuities in the experiences of felt and enacted stigma among women with HIV/AIDS.

作者信息

Lekas Helen-Maria, Siegel Karolynn, Schrimshaw Eric W

机构信息

Center for Psychosocial Study of Health & Illness, Mailman School of Public Health, Columbia University, New York, NY 10032, USA.

出版信息

Qual Health Res. 2006 Nov;16(9):1165-90. doi: 10.1177/1049732306292284.

Abstract

In the post-1996 era, the effectiveness of antiviral therapies (such as highly active antiretroviral therapy [HAART]), which transformed HIV/AIDS into a more manageable disease, raised expectations that the disease's stigma would decrease. The authors compared focused-interview data from a pre-HAART (1994 to 1996) and a HAART-era (2000 to 2003) sample of African American, Puerto Rican, and White women living with HIV/AIDS to identify changes in stigma experiences and suggest reasons for continued stigmatization. In both eras, general stereotypes about HIV/AIDS, as well as gender- and race-related stereotypes about the disease, were identified. Internalizing any of these stereotypes was a necessary and sufficient condition for feeling stigmatized. Instances of enacted stigmatization were more frequent and intense in the pre-HAART era. Nevertheless, misinformation and irrational fears of contagion, which triggered stigmatizing behavior, persisted into the HAART era. This analysis revealed that although enacted stigmatization has decreased slightly, felt stigma remains a primary adaptational challenge facing women with HIV/AIDS.

摘要

在1996年后的时代,抗病毒疗法(如高效抗逆转录病毒疗法[HAART])的有效性将艾滋病毒/艾滋病转变为一种更易于控制的疾病,这引发了人们对该疾病污名化现象会减少的期望。作者比较了1994年至1996年HAART治疗前以及2000年至2003年HAART治疗时代的非裔美国、波多黎各和感染艾滋病毒/艾滋病的白人女性样本的重点访谈数据,以确定污名化经历的变化,并找出持续存在污名化现象的原因。在这两个时代,均发现了对艾滋病毒/艾滋病的一般刻板印象,以及与该疾病相关的性别和种族刻板印象。内化这些刻板印象中的任何一种都是感到受污名化的必要且充分条件。在HAART治疗前的时代,实际发生的污名化情况更为频繁和严重。然而,引发污名化行为的错误信息和对传染的非理性恐惧在HAART治疗时代仍然存在。该分析表明,尽管实际发生的污名化现象略有减少,但感知到的污名仍然是感染艾滋病毒/艾滋病女性面临的主要适应性挑战。

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