van Asselt D
Dept Geriatric Medicine, Medical Centre Leeuwarden, Henri Dunantweg 2, 888, 8901, BR Leeuwarden, The Netherlands.
Z Gerontol Geriatr. 2006 Oct;39(5):371-5. doi: 10.1007/s00391-006-0373-7.
Advance directives allow competent persons to extend their right of self-determination into the future, by recording choices that are intended to influence their future care should they become unable to make choices. They are considered tools to facilitate end-of-life decision making. Advance directives are a form of anticipatory decision-making. This article will focus on instruction directives against a certain treatment, so-called advance refusals. The most important legal requirement is the acknowledgement of patient autonomy. This condition is met in all European countries. The legal uncertainties surrounding advance refusals are focused on practical modalities rather than on the validity of the general principle. According to leading ethics the underlying moral rule of advanced directives is that all truly autonomous refusals of treatment must be respected, no matter what the consequences. Physicians find it hard to adhere to the wishes and choices of patients as expressed in directives. They find the text ambiguous. Another weakness is that directives give little information about what in the patient's view constitutes a good quality of life. Some health professionals lack the willingness to step outside their own value systems and fully embrace that of the patient. Empathic skills are required. Very few persons create an advance directive. Furthermore, of the created directives only some are accessible when patients are admitted to hospital. However, when directives are available they usually influence medical treatment decisions.
预立医疗指示允许有行为能力的人通过记录一些选择,将其自我决定权延伸至未来,这些选择旨在在他们无法做出选择时影响其未来的医疗护理。它们被视为促进临终决策的工具。预立医疗指示是一种预先决策的形式。本文将重点关注针对某种治疗的指示性指令,即所谓的预先拒绝。最重要的法律要求是承认患者的自主权。所有欧洲国家都满足这一条件。围绕预先拒绝的法律不确定性集中在实际操作方式上,而非一般原则的有效性。根据主流伦理学观点,预立医疗指示的基本道德准则是,所有真正自主的治疗拒绝都必须得到尊重,无论后果如何。医生发现很难遵循预立医疗指示中所表达的患者意愿和选择。他们觉得文本含糊不清。另一个弱点是,预立医疗指示几乎没有提供关于在患者看来什么构成良好生活质量的信息。一些医护人员缺乏走出自身价值体系并完全接受患者价值体系的意愿。这需要共情能力。很少有人会制定预立医疗指示。此外,在已制定的指示中,只有一部分在患者住院时可供查阅。然而,当预立医疗指示可用时,它们通常会影响医疗决策。