Pezzilli Raffaele, Bini Laura, Fantini Lorenzo, Baroni Elena, Campana Davide, Tomassetti Paola, Corinaldesi Roberto
World J Gastroenterol. 2006 Oct 21;12(39):6249-51. doi: 10.3748/wjg.v12.i39.6249.
In an era such as the present one in which there is a high demand for health services with the associated pressure of controlling spending, health care organizations are concerned about the cost-effectiveness of quality improvement interventions. On the other hand, the impact of the disease and the treatment on the patient's overall well-being and functioning has become a topic of growing interest not only in clinical research but also in practice. The clinical evaluation of the benefits of specific treatments for chronic, debilitating and incurable diseases should increasingly include formal assessment of patient activity and well-being. Thus, health-related quality of life as subjectively perceived by the patient, is becoming a major issue in the evaluation of any therapeutic intervention, mainly in patients with chronic or difficult diseases where the aim of the intervention is to keep patients either symptom-free and capable of living in the community for a long time or to reduce the discomfort caused by the disease. In this paper, we review the current knowledge on the quality of life assessment in chronic pancreatitis patients.
在当前这样一个对医疗服务有高需求且伴随着控制开支压力的时代,医疗保健组织关注质量改进干预措施的成本效益。另一方面,疾病和治疗对患者整体幸福感及功能的影响不仅在临床研究中,而且在实践中都已成为一个越来越受关注的话题。对慢性、使人衰弱且无法治愈的疾病的特定治疗益处的临床评估,应越来越多地包括对患者活动和幸福感的正式评估。因此,患者主观感受到的与健康相关的生活质量,正成为评估任何治疗干预措施的一个主要问题,主要是在患有慢性或疑难疾病的患者中,在这些患者中,干预的目标是使患者要么无症状且能够长期在社区生活,要么减少疾病引起的不适。在本文中,我们综述了关于慢性胰腺炎患者生活质量评估的当前知识。