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肺移植候选者的照料者:当患者接受心理服务时,他们会从中受益吗?

Caregivers of lung transplant candidates: do they benefit when the patient is receiving psychological services?

作者信息

Rodrigue James R, Widows Michelle R, Baz Maher A

机构信息

Beth Israel Deaconess Medical Center, Boston, MA, USA.

出版信息

Prog Transplant. 2006 Dec;16(4):336-42. doi: 10.1177/152692480601600409.

Abstract

BACKGROUND

We recently demonstrated that a targeted psychological intervention has quality of life, mood, and social intimacy benefits for patients awaiting lung transplantation.

OBJECTIVE

To evaluate the impact of the patient's participation in treatment on caregiver functioning.

DESIGN AND INTERVENTION

Caregivers of patients participating in a randomized clinical trial designed to compare 2 telephone-based psychological interventions completed outcome measures at baseline and at 1 and 3 months after patients completed treatment. Patients were randomized to receive either supportive therapy (emotional and educational support) or quality-of-life therapy (a cognitive-behavioral intervention that provided specific intervention strategies to boost happiness and satisfaction in life domains that compromise overall quality of life). Caregivers did not participate directly in the interventions. Setting and Participants-Participants were 28 caregivers from a large lung transplant center in the southeastern United States.

MAIN OUTCOME MEASURES

Quality of life (Quality of Life Inventory), mood disturbance (Profile of Mood States-Short Form), and social intimacy (Miller Social Intimacy Scale).

RESULTS AND CONCLUSIONS

Caregivers reported higher quality of life and lower mood disturbance scores, and comparable social intimacy scores relative to the patients for whom they were caring. Caregivers whose patients received quality-of-life therapy reported vicarious gains in quality of life, mood disturbance, and social intimacy, relative to those whose patients received support therapy. Finally, the degree of change in patients' quality of life, mood disturbance, and social intimacy contributed significantly to predicting caregivers' functioning at the 3-month follow-up assessment. These findings suggest that telephone-based quality-of-life therapy has beneficial effects that extend beyond patients to their caregivers.

摘要

背景

我们最近证明,针对性的心理干预对等待肺移植的患者的生活质量、情绪和社会亲密感有益。

目的

评估患者参与治疗对照顾者功能的影响。

设计与干预

参与一项随机临床试验的患者的照顾者,该试验旨在比较两种基于电话的心理干预措施,在患者完成治疗后的基线、1个月和3个月时完成结局测量。患者被随机分配接受支持性治疗(情感和教育支持)或生活质量治疗(一种认知行为干预,提供特定干预策略以提高在影响总体生活质量的生活领域中的幸福感和满意度)。照顾者未直接参与干预。地点和参与者——参与者是来自美国东南部一家大型肺移植中心的28名照顾者。

主要结局测量指标

生活质量(生活质量量表)、情绪障碍(情绪状态简表)和社会亲密感(米勒社会亲密感量表)。

结果与结论

照顾者报告的生活质量更高,情绪障碍得分更低,与他们所照顾的患者相比,社会亲密感得分相当。与接受支持性治疗的患者的照顾者相比,接受生活质量治疗的患者的照顾者报告在生活质量、情绪障碍和社会亲密感方面有替代性收获。最后,患者生活质量、情绪障碍和社会亲密感的变化程度对预测3个月随访评估时照顾者的功能有显著贡献。这些发现表明,基于电话的生活质量治疗具有有益效果,不仅惠及患者,还能延伸至其照顾者。

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