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炎症性肠病患者家庭远程管理系统的可行性与可接受性:一项为期6个月的试点研究。

Feasibility and acceptance of a home telemanagement system in patients with inflammatory bowel disease: a 6-month pilot study.

作者信息

Cross Raymond K, Finkelstein Joseph

机构信息

Department of Medicine, Division of Gastroenterology and Hepatology, University of Maryland School of Medicine, Baltimore, MD 21201, USA.

出版信息

Dig Dis Sci. 2007 Feb;52(2):357-64. doi: 10.1007/s10620-006-9523-4. Epub 2007 Jan 9.

DOI:10.1007/s10620-006-9523-4
PMID:17211702
Abstract

Our purpose was to assess the acceptance and feasibility of a home telemanagement system (HAT) in inflammatory bowel disease (IBD). The HAT consists of a laptop and a scale. Subjects were required to complete weekly self-testing for 6 months. Disease activity, quality of life, and knowledge were assessed at baseline and 6 months. Attitudinal surveys were completed at 6 months. Twenty-five subjects completed the study. Ninety-one percent of patients thought that self-testing was not complicated. Eighty-six percent said that self-testing did not interfere with their usual activities. Ninety-one percent of patients would consider using a HAT in the future. Adherence with self-testing was 91%. Improvements in disease activity and quality of life, and significant improvements in knowledge, were observed after implementation of the HAT. The HAT is feasible and accepted in IBD. We predict that the HAT will positively affect adherence, monitoring, and patient education, resulting in improved disease activity and quality of life.

摘要

我们的目的是评估家庭远程管理系统(HAT)在炎症性肠病(IBD)中的可接受性和可行性。HAT由一台笔记本电脑和一台秤组成。受试者需要在6个月内每周进行自我检测。在基线和6个月时评估疾病活动度、生活质量和知识水平。在6个月时完成态度调查。25名受试者完成了研究。91%的患者认为自我检测并不复杂。86%的患者表示自我检测没有干扰他们的日常活动。91%的患者会考虑在未来使用HAT。自我检测的依从率为91%。在实施HAT后,观察到疾病活动度和生活质量有所改善,知识水平有显著提高。HAT在IBD中是可行的且被接受的。我们预测HAT将对依从性、监测和患者教育产生积极影响,从而改善疾病活动度和生活质量。

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J Clin Gastroenterol. 2006 Mar;40(3):200-8. doi: 10.1097/00004836-200603000-00006.
2
Telemedicine-assisted home support for patients with advanced chronic obstructive pulmonary disease: preliminary results after nine-month follow-up.
J Telemed Telecare. 2005;11 Suppl 1:86-8. doi: 10.1258/1357633054461697.
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Telecardiology for patients with chronic heart failure: the 'SHL' experience in Israel.慢性心力衰竭患者的远程心脏病学:以色列的“SHL”经验。
Int J Cardiol. 2004 Oct;97(1):49-55. doi: 10.1016/j.ijcard.2003.07.030.
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基于移动健康系统的炎症性肠病患者自我管理支持方案的最佳证据总结。
Digit Health. 2024 Jun 11;10:20552076241261906. doi: 10.1177/20552076241261906. eCollection 2024 Jan-Dec.
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Telemedicine in inflammatory bowel diseases: A new brick in the medicine of the future?炎症性肠病中的远程医疗:未来医学的一块新基石?
World J Methodol. 2023 Sep 20;13(4):194-209. doi: 10.5662/wjm.v13.i4.194.
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World J Gastroenterol. 2023 Feb 21;29(7):1139-1156. doi: 10.3748/wjg.v29.i7.1139.
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Ital J Pediatr. 2023 Jan 26;49(1):15. doi: 10.1186/s13052-023-01418-7.
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