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中国患者及其家属对癌症不同阶段告知真相的不同态度。

Different attitudes of Chinese patients and their families toward truth telling of different stages of cancer.

作者信息

Jiang Yu, Liu Chang, Li Jun-Ying, Huang Mei-Juan, Yao Wen-Xiu, Zhang Ru, Yao Bing, Du Xiao-Bo, Chen Jing, Xie Ke, Zhao Xia, Wei Yu-Quan

机构信息

State Key Laboratory of Biotherapy, West China Hospital, Sichuan University, Chengdu 610041, People's Republic of China.

出版信息

Psychooncology. 2007 Oct;16(10):928-36. doi: 10.1002/pon.1156.

DOI:10.1002/pon.1156
PMID:17285684
Abstract

OBJECTIVE

Cancer patients and their families differed in their attitude toward truth telling. The objective is to investigate different attitudes of Chinese patients or families toward whether and how to disclose diagnosis to patients with different stages of cancer and to examine the difference between the two groups.

METHODS

A questionnaire was delivered to 1023 participants.

RESULTS

Three hundred and eighty-two patients and 482 families completed the questionnaire. Cancer patients were more likely than families to believe that patient should be informed of the diagnosis (early-stage, 90.8 vs 69.9%, P<0.001; terminal stage, 60.5 vs 34.4%, P<0.001), and that doctor-in-charge was the appropriate person to disclose the diagnosis. Most participants thought that patient should be disclosed immediately after the diagnosis. Nearly half of participants reported that patient should be disclosed in a quiet and undisturbed room. When the hypothetic diagnosis changed from early-stage cancer to terminal illness, the number of participants, who wanted patient to know the diagnosis, decreased significantly.

CONCLUSION

Our findings indicated that Chinese cancer patients and their families differed in their attitude toward truth telling and the attitudes toward such a disclosure were influenced by disease stage. Physicians should realize this phenomenon and pay more attention to the skills of how to disclose the cancer diagnosis.

摘要

目的

癌症患者及其家属对告知真相的态度存在差异。目的是调查中国患者或家属对于向处于不同癌症阶段的患者披露诊断结果与否以及如何披露的不同态度,并检验两组之间的差异。

方法

向1023名参与者发放问卷。

结果

382名患者和482名家属完成了问卷。癌症患者比家属更倾向于认为应该告知患者诊断结果(早期,90.8%对69.9%,P<0.001;晚期,60.5%对34.4%,P<0.001),且认为主管医生是披露诊断结果的合适人选。大多数参与者认为应在诊断后立即告知患者。近一半的参与者表示应在安静且不受干扰的房间告知患者。当假设诊断从早期癌症变为晚期疾病时,希望患者知晓诊断结果的参与者数量显著减少。

结论

我们的研究结果表明,中国癌症患者及其家属对告知真相的态度存在差异,且这种披露态度受疾病阶段影响。医生应认识到这一现象,并更加关注披露癌症诊断结果的技巧。

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