Dormandy Elizabeth, Tsui Elaine Y L, Marteau Theresa M
Department of Psychology (at Guy's), Health Psychology Section, Institute of Psychiatry, King's College London, London, UK.
Patient Educ Couns. 2007 Jun;66(3):278-95. doi: 10.1016/j.pec.2007.01.001. Epub 2007 Feb 14.
To assess the reliability and validity of a simplified questionnaire-based measure of informed choice in populations with low literacy. The measure comprises (a) knowledge about the test and (b) attitudes towards undergoing the test. Responses to (a) and (b) together with information on test uptake, are used to classify choices as informed or uninformed.
A cross-sectional study of 79 pregnant women (46 women with higher, and 33 with lower education levels) completed a simplified questionnaire, a standardised questionnaire and a semi-structured interview about antenatal sickle cell and thalassaemia (SCT) screening. The measures used were: (a) informed choice, based on knowledge about the test, attitudes towards undergoing the test, and uptake of the test and (b) ease of completion measures.
The simplified measures of knowledge and attitudes were able to distinguish between women classified according to interview responses as having good or poor knowledge (knowledge scores 6.8 versus 3.2, p<0.001), and positive or negative attitudes towards undergoing the test (attitude scores 20.6 versus 16.2, p=0.023). There was no difference in rates of informed choice derived from the simplified or standardised measures (54% versus 51%, 95% CI difference -11 to 19). Women with lower levels of education found the simplified questionnaire easier to complete than the standardised version (11.0 versus 9.6, p=0.009). Those with higher levels of education found no difference in ease of completion between the two versions of the questionnaire (11.8 versus 11.6, p=0.54).
A simplified questionnaire-based measure of informed choice in antenatal SCT screening is as reliable and valid as a more complex standardised version and for those with less education, easier to complete.
The simplified questionnaire-based measure of informed choice is suitable for use in populations with low and high levels of education.
评估一种基于简化问卷的低识字率人群知情选择测量方法的可靠性和有效性。该测量方法包括:(a)对检测的了解程度,以及(b)对接受检测的态度。对(a)和(b)的回答以及检测接受情况的信息,用于将选择分类为知情或不知情。
对79名孕妇(46名教育水平较高的女性和33名教育水平较低的女性)进行横断面研究,她们完成了一份简化问卷、一份标准化问卷以及关于产前镰状细胞和地中海贫血(SCT)筛查的半结构化访谈。所采用的测量方法包括:(a)基于对检测的了解程度、对接受检测的态度以及检测接受情况的知情选择,和(b)问卷完成的难易程度测量。
关于知识和态度的简化测量方法能够区分根据访谈回答被分类为知识掌握良好或较差的女性(知识得分分别为6.8和3.2,p<0.001),以及对接受检测持积极或消极态度的女性(态度得分分别为20.6和16.2,p=0.023)。简化测量方法和标准化测量方法得出的知情选择率没有差异(分别为54%和51%,95%置信区间差异为-11至19)。教育水平较低的女性发现简化问卷比标准化问卷更容易完成(分别为11.0和9.6,p=0.009)。教育水平较高的女性发现两种版本问卷在完成难易程度上没有差异(分别为11.8和11.6,p=0.54)。
产前SCT筛查中基于简化问卷的知情选择测量方法与更复杂的标准化版本一样可靠有效,并且对于教育程度较低的人来说更容易完成。
基于简化问卷的知情选择测量方法适用于教育水平高低不同的人群。