Wisten A, Zingmark K
Department of Internal Medicine, Sunderby Hospital, SE-97180 Luleå, Sweden.
Resuscitation. 2007 Jul;74(1):68-74. doi: 10.1016/j.resuscitation.2006.11.014. Epub 2007 Mar 13.
The death of a close family member is one of life's greatest tragedies. When death is sudden and unexpected, there is an increased risk of posttraumatic reactions and complicated mourning. Care of the bereaved is still often overlooked in medical training and clinical practise. The aim of this study was to elucidate the perceived support and the needs of bereaved parents confronted with sudden cardiac death (SCD) in a young son or daughter. Data were derived from a qualitative contents analysis of tape-recorded, in-depth interviews with bereaved parents confronted with SCD 5-12 years post-loss. The 20 deceased individuals were part of the Swedish forensic SCD cohort of 15-35 year olds from 1992 to 1999. One third of the parents had had no contact with the emergency department (ED), one third had been disappointed after meeting care-givers at the ED who did not act with sensitivity and consistency, while one third were more or less satisfied with the handling at the ED. A majority of the parents experienced a lack of follow-up care; they had been left mainly to themselves to find information and support. Four factors were identified as being particularly important for the parents: evidence, reconstruction, explanation and sensitivity. There is a need of better routines to help the suddenly bereaved. A model of the major needs and a plan for the support needed are proposed.
近亲的离世是人生中最大的悲剧之一。当死亡突然且出乎意料时，创伤后反应和复杂哀伤的风险会增加。在医学培训和临床实践中，对 bereaved 的照护常常仍被忽视。本研究的目的是阐明面对年幼子女突然心脏性死亡（SCD）的 bereaved 父母所感受到的支持和需求。数据来自对 loss 后 5 - 12 年面对 SCD 的 bereaved 父母进行的录音深入访谈的定性内容分析。这 20 名逝者是 1992 年至 1999 年瑞典 15 - 35 岁法医 SCD 队列的一部分。三分之一的父母未曾与急诊科（ED）接触，三分之一的父母在与 ED 的护理人员会面后感到失望，这些护理人员的行为缺乏敏感度和连贯性，而三分之一的父母对 ED 的处理或多或少感到满意。大多数父母经历了后续护理的缺失；他们主要只能靠自己去寻找信息和支持。有四个因素被确定对父母尤为重要：证据、重建、解释和敏感度。需要更好的常规做法来帮助那些突然 bereaved 的人。提出了主要需求的模型以及所需支持的计划
