Röing Marta, Hirsch Jan-Michaél, Holmström Inger
Department of Surgical Sciences, Oral and Maxillofacial Surgery, Uppsala University, Uppsala, Sweden.
Patient Educ Couns. 2007 Aug;67(3):301-6. doi: 10.1016/j.pec.2007.02.001. Epub 2007 Mar 19.
The aim of this retrospective qualitative study was to describe how patients with oral cancer experience their sickness and treatment.
A purposeful sample of seven patients with oral cancer was interviewed. Data were analysed using a phenomenological approach outlined by van Manen.
The essence of the patients' experiences can be described as embodiment in a mouth that has become unreal, or 'uncanny'. At treatment start the body is invaded by cancer, during treatment there is no escape from a wounded mouth, at treatment end the mouth is disabled.
The findings indicate that oral cancer patients' need for support may increase as treatment progresses and may be greatest at end of radiotherapy, as they return home with mouths that have not recovered after treatment and do not function normally.
This suggests the importance of understanding the patients' situation during treatment and their desire for a return to normal living and normal mouth functions at treatment end. If possible, plans for oral rehabilitation should be considered in initial treatment planning. As the treatment of oral cancer is multiprofessional, this knowledge may be useful in guiding the organization of oral cancer care and multiprofessional collaboration.
这项回顾性定性研究的目的是描述口腔癌患者如何体验他们的疾病和治疗过程。
对七名口腔癌患者进行了有目的的抽样访谈。使用范曼恩概述的现象学方法对数据进行了分析。
患者体验的本质可描述为体现在一张变得不真实或“怪异”的口中。在治疗开始时，身体被癌症侵袭，治疗期间无法逃离受伤的口腔，治疗结束时口腔功能丧失。
研究结果表明，随着治疗的推进，口腔癌患者对支持的需求可能会增加，在放疗结束时需求可能最大，因为他们回家时口腔在治疗后尚未恢复且无法正常运作。
这表明了解患者在治疗期间的情况以及他们在治疗结束时恢复正常生活和正常口腔功能的愿望的重要性。如果可能，应在初始治疗计划中考虑口腔康复计划。由于口腔癌的治疗涉及多专业，这些知识可能有助于指导口腔癌护理的组织和多专业协作。
