Petri Suzanne, Berthelsen Connie B
Department of Oncology, Section for Radiotherapy, Rigshospitalet, Copenhagen University Hospital, Copenhagen, Denmark;
Section of Nursing, Institute of Health, Aarhus University, Aarhus, Denmark.
Int J Qual Stud Health Well-being. 2015 Nov 24;10:29397. doi: 10.3402/qhw.v10.29397. eCollection 2015.
To explore and describe the essential meaning of lived experiences of the phenomenon: Everyday life during curative radiotherapy in patients with non-small-cell lung cancer (NSCLC).
Radiotherapy treatment in patients with NSCLC is associated with severe side effects such as fatigue, anxiety, and reduced quality of life. However, little is known about the patients' experience of everyday life during the care trajectory.
This study takes a reflective lifeworld approach using an empirical application of phenomenological philosophy described by Dahlberg and colleagues.
A sample of three patients treated with curative radiotherapy for NSCLC was interviewed 3 weeks after the end of radiotherapy treatment about their experiences of everyday life during their treatment. Data were collected in 2014 and interviews and analysis were conducted within the descriptive phenomenological framework.
The essential meaning structure of the phenomenon studied was described as "Hope for recovery serving as a compass in a changed everyday life," which was a guide for the patients through the radiotherapy treatment to support their efforts in coping with side effects. The constituents of the structure were: Radiotherapy as a life priority, A struggle for acceptance of an altered everyday life, Interpersonal relationships for better or worse, and Meeting the health care system.
The meaning of hope was essential during radiotherapy treatment and our results suggest that interpersonal relationships can be a prerequisite to the experience of hope. "Hope for recovery serving as a compass in a changed everyday life," furthermore identifies the essentials in the patients' assertive approach to believing in recovery and thereby enabling hope in a serious situation.
探讨并描述非小细胞肺癌(NSCLC)患者在根治性放疗期间日常生活这一现象的生活体验的本质意义。
NSCLC患者的放射治疗会带来严重的副作用,如疲劳、焦虑和生活质量下降。然而,对于患者在整个治疗过程中的日常生活体验却知之甚少。
本研究采用反思性生活世界方法,实证应用了达尔伯格及其同事所描述的现象学哲学。
选取3例接受根治性放疗的NSCLC患者,在放疗结束3周后,就其治疗期间的日常生活体验进行访谈。数据于2014年收集,并在描述性现象学框架内进行访谈和分析。
所研究现象的本质意义结构被描述为“康复的希望成为改变后的日常生活中的指南针”,这是患者在放疗过程中的指导,以支持他们应对副作用的努力。该结构的组成部分包括:放疗作为生活的首要任务、努力接受改变后的日常生活、人际关系的好坏以及与医疗系统的接触。
希望的意义在放疗期间至关重要,我们的研究结果表明人际关系可能是体验希望的前提条件。“康复的希望成为改变后的日常生活中的指南针”进一步明确了患者坚信康复从而在严峻形势中怀抱希望的坚定态度的要点。