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为有姑息治疗需求的癌症患者提供支持:社区护士的角色认知

Supporting cancer patients with palliative care needs: district nurses' role perceptions.

作者信息

Griffiths Jane, Ewing Gail, Rogers Margaret, Barclay Stephen, Martin Anna, McCabe Janet, Todd Chris

机构信息

School of Nursing Midwifery and Social Work, University of Manchester, Manchester, United Kingdom.

出版信息

Cancer Nurs. 2007 Mar-Apr;30(2):156-62. doi: 10.1097/01.NCC.0000265013.63547.4a.

Abstract

The aim of this study was to examine UK district nurses' perceptions of their role in supporting palliative care cancer patients. Patients with cancer are living longer with the disease. District nurses are the largest UK workforce caring for people with cancer at home, the preferred place of care. Meeting patients' supportive and palliative care needs is complex. Little is known about district nurses' supportive role in the early phase of palliative care. Semistructured interviews were conducted with 34 district nurses. Data were analyzed thematically, with assistance from Atlas/ti. A dominant theme emerging from the interviews was ambiguity in the district nurses' supportive role in early palliative care. District nurses discussed the importance of making contact early on to support cancer patients and their families but had difficulty articulating this "support." Ambiguity, lack of confidence, and perceived skill deficits presented district nurses with dilemmas that were difficult to resolve. District nurses have great potential for meeting cancer patients' supportive and palliative care needs, a potential not currently realized. Education alone is unlikely to improve practice without an understanding of the tensions faced by district nurses in their work. Recognizing and addressing dilemmas in the everyday work of district nurses is central to moving practice forward.

摘要

本研究旨在考察英国社区护士对其在支持癌症姑息治疗患者方面所扮演角色的看法。癌症患者的生存期越来越长。社区护士是英国在家护理癌症患者的最大劳动力群体,而家是患者首选的护理场所。满足患者的支持性和姑息治疗需求十分复杂。对于社区护士在姑息治疗早期阶段的支持性作用,人们了解甚少。研究人员对34名社区护士进行了半结构化访谈。在Atlas/ti软件的辅助下,对数据进行了主题分析。访谈中出现的一个主要主题是,社区护士在姑息治疗早期的支持性作用存在模糊性。社区护士讨论了尽早与癌症患者及其家属取得联系以提供支持的重要性,但在阐述这种“支持”时却遇到困难。模糊性、缺乏信心以及感知到的技能不足给社区护士带来了难以解决的困境。社区护士在满足癌症患者的支持性和姑息治疗需求方面具有巨大潜力,但目前这种潜力尚未得到发挥。如果不了解社区护士在工作中面临的压力,仅靠教育不太可能改善实践。认识并解决社区护士日常工作中的困境是推动实践发展的关键。

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