Robitail Stéphane, Siméoni Marie-Claude, Ravens-Sieberer Ulricke, Bruil Janet, Auquier Pascal
Perceived Health Research Unit, School of Medicine, Marseille, France.
J Clin Epidemiol. 2007 May;60(5):469-78. doi: 10.1016/j.jclinepi.2006.09.007. Epub 2007 Feb 5.
The aims of this study were to assess the level of agreement and the magnitude of discrepancies between children and their parents, and whether these levels of agreement/discrepancy depend on the country of living, the domains of quality of life assessed, the age and gender of the children, and other background variables.
The KIDSCREEN pilot study involved 2,526 youth-proxy pairs in seven European countries. The health-related quality of life (HRQoL) of children and their parents as proxy has been assessed in parallel using a 10-dimension KIDSCREEN-52 Pilot test questionnaire.
For the 10 dimensions, the mean difference between proxy and youth score decreases as the HRQoL level increases. Physical and cognitive domains showed the major agreement between youth and proxy measure. Social and psychological domains presented the main discrepancies. Linear regression models highlighted that the agreement was depending on the country for the 10 dimensions. Impact of age and gender on agreement were not consistent across the 10 dimensions.
Agreement is higher for the girls than for the boys and for the adolescents than for children. To further explore the country effect on agreement, results need replication in representative studies.
本研究旨在评估儿童与其父母之间的一致性水平及差异程度，以及这些一致性/差异水平是否取决于居住国家、所评估的生活质量领域、儿童的年龄和性别以及其他背景变量。
儿童生活质量测评（KIDSCREEN）试点研究涉及七个欧洲国家的2526对青少年-代理人组合。使用10维度的儿童生活质量测评-52试点测试问卷，同时评估了儿童及其作为代理人的父母的健康相关生活质量（HRQoL）。
对于这10个维度，随着HRQoL水平的提高，代理人与青少年得分之间的平均差异减小。身体和认知领域在青少年与代理人测量之间显示出主要的一致性。社会和心理领域存在主要差异。线性回归模型强调，对于这10个维度而言，一致性取决于国家。年龄和性别对一致性的影响在这10个维度中并不一致。
女孩的一致性高于男孩，青少年高于儿童。为进一步探究国家对一致性产生影响这一情况，研究结果需要在代表性研究中进行重复验证。
