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“如果你感染了艾滋病……你必须独自承受”:理解中国对艾滋病毒/艾滋病的社会建构

"If you get AIDS... you have to endure it alone": understanding the social constructions of HIV/AIDS in China.

作者信息

Zhou Yanqiu Rachel

机构信息

School of Social Work, Institute on Globalization and the Human Condition, McMaster University, Hamilton, Ont., Canada.

出版信息

Soc Sci Med. 2007 Jul;65(2):284-95. doi: 10.1016/j.socscimed.2007.03.031. Epub 2007 Apr 24.

Abstract

Recent AIDS research has documented the widespread discrimination toward people living with HIV/AIDS (PLWHA) in China. General ignorance and misconceptions about this disease have been identified as the two primary reasons for this prejudice. Yet, little attention has been paid to social constructions of HIV/AIDS in the Chinese context and to the processes by which such constructions are experienced, understood, reacted to, and, perhaps, reconstructed through social and interpersonal interactions. Based on a qualitative study of Chinese PLWHA's illness experiences, this paper explores how HIV/AIDS, as a social construct, is understood by these individuals in the context of their daily encounters. It is discovered that, despite their knowledge of HIV/AIDS, PLWHA's perceptions about and responses to this disease are greatly influenced by their experiences of interacting with others (e.g., their families, friends, and health workers). The conflicts between individuals' mastery of knowledge pertaining to, and their overreactions in practice toward, HIV-infected bodies suggest that AIDS education should not be limited to the dissemination of knowledge per se, but that the interpersonal or interactive dimensions of discrimination and efforts to combat it must also be taken into account.

摘要

近期的艾滋病研究记录了在中国对艾滋病毒/艾滋病感染者普遍存在的歧视现象。对这种疾病的普遍无知和误解被认为是这种偏见的两个主要原因。然而,在中国背景下,很少有人关注艾滋病毒/艾滋病的社会建构以及通过社会和人际互动来体验、理解、应对乃至可能重构这种建构的过程。基于对中国艾滋病毒/艾滋病感染者患病经历的定性研究,本文探讨了艾滋病毒/艾滋病作为一种社会建构,在这些个体的日常接触情境中是如何被理解的。研究发现,尽管艾滋病毒/艾滋病感染者了解这种疾病,但他们对这种疾病的认知和反应在很大程度上受到与他人(如家人、朋友和医护人员)互动经历的影响。个体对与艾滋病毒感染相关知识的掌握与其在实际中对感染艾滋病毒者身体的过度反应之间的冲突表明,艾滋病教育不应仅限于知识的传播本身,还必须考虑到歧视的人际或互动层面以及与之抗争的努力。

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