Drossman D A, Leserman J, Mitchell C M, Li Z M, Zagami E A, Patrick D L
Department of Medicine, University of North Carolina, Chapel Hill 27599.
Dig Dis Sci. 1991 Dec;36(12):1746-55. doi: 10.1007/BF01296620.
We randomly surveyed 997 members of the Crohn's and Colitis Foundation of America with inflammatory bowel disease (320 ulcerative colitis and 671 Crohn's disease) in order to: (1) assess their health status, (2) compare members with ulcerative colitis and Crohn's disease, and (3) determine the correlates of health care use. Data collection included variables relating to physical and psychological symptoms, medication use, daily functional status, perceptions of health, and coping styles. The findings indicate that: (1) despite a number of symptoms and complications related to inflammatory bowel disease, the health status of this population is generally good and may be a result of effective coping styles; (2) those with Crohn's disease have more psychosocial difficulties, which appear related to greater symptom severity; (3) both psychosocial and physical health variables are related to number of physician visits, while primarily physical health variables are related to number of hospitalizations and surgeries. Further studies are needed to determine the representativeness of this self-selected sample with others having IBD. In this study, we have provided the basis for developing a more sensitive measure of health status than currently exists, and one which may have implications for future clinical studies.
我们随机调查了美国克罗恩病和结肠炎基金会的997名炎症性肠病患者（320例溃疡性结肠炎患者和671例克罗恩病患者），目的是：（1）评估他们的健康状况；（2）比较溃疡性结肠炎患者和克罗恩病患者；（3）确定医疗保健使用情况的相关因素。数据收集包括与身体和心理症状、药物使用、日常功能状态、健康认知及应对方式相关的变量。研究结果表明：（1）尽管存在一些与炎症性肠病相关的症状和并发症，但该人群的健康状况总体良好，这可能是有效应对方式的结果；（2）克罗恩病患者有更多的心理社会问题，这似乎与更严重的症状有关；（3）心理社会和身体健康变量均与看医生次数有关，而主要是身体健康变量与住院和手术次数有关。需要进一步研究以确定这个自我选择样本与其他炎症性肠病患者的代表性。在本研究中，我们为开发一种比现有方法更敏感的健康状况测量方法提供了依据，该方法可能对未来的临床研究有影响。
