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埃斯特雷马杜拉地区的姑息治疗项目:人口稀少地区的有效公共卫生保健模式。

Regional palliative care program in Extremadura: an effective public health care model in a sparsely populated region.

作者信息

Herrera Emilio, Rocafort Javier, De Lima Liliana, Bruera Eduardo, García-Peña Francisco, Fernández-Vara Guillermo

机构信息

Extramaduran Health Service, Mérida, Extremadura, Spain.

出版信息

J Pain Symptom Manage. 2007 May;33(5):591-8. doi: 10.1016/j.jpainsymman.2007.02.021.

Abstract

The Regional Palliative Care Program in Extremadura (RPCPEx) was created and fully integrated into the Public Health Care System in 2002. The local health care authorities of Extremadura (a large sparsely populated region in the west of Spain with 1,083,897 inhabitants) decided to guarantee palliative care as a basic right, offering maximum coverage, availability, and equity, functioning at all levels of assistance and based on the complexity of the case. The program provides full coverage of the region through a network of eight Palliative Care Teams under the direction of a regional coordinator. The mobile teams work in acute hospitals and in the community. This paper describes the program, using qualitative and quantitative indicators of structure, process, and outcome. Qualitative indicators assess, among others, the performance of the regional network, including the outcomes of the quality, training, registry, treatment, and research groups. Quantitative indicators applied consisted of the number of professionals (1/26,436 inhabitants), number of patients (1,635/million inhabitants/year), number of activities/million inhabitants/year (6,183 hospital and 3,869 home visits; 1,863 consultations; 14,748 advising services; 11,539 coordination meetings; and 483 educational meetings), cost of care (2,242,000 Euros per year), and opioid consumption (494,654 daily defined doses/year). Four years after the planning process and three years after becoming operational, the RPCPEx offers an effective and efficient model integrated into the public health care system and is able to offer comprehensive coverage, availability, equity and networking among all the structures and levels of the program. Several structural and organizational tools were developed, which may be adopted by other programs within the scope of public health. The provision of palliative care should not be conditioned by the patient's geographical location, his or her condition or disease or on the ability to pay, but on need alone. This model has successfully implemented palliative care in a region that offered many challenges, including limited resources and a disperse population in a geographically extensive region. These variables are also common in many rural areas in developing countries and the regional palliative care program offers a flexible approach that can be adapted to the needs and resources in different settings and countries in the world.

摘要

埃斯特雷马杜拉地区姑息治疗项目(RPCPEx)于2002年设立并完全融入公共医疗体系。埃斯特雷马杜拉(西班牙西部一个人口稀少的大区,有1,083,897名居民)的地方医疗当局决定将姑息治疗作为一项基本权利予以保障,提供最大程度的覆盖、可及性和公平性,根据病例的复杂性在各级医疗服务中发挥作用。该项目通过一个由区域协调员指导的八个姑息治疗团队网络实现对该地区的全面覆盖。流动团队在急症医院和社区开展工作。本文使用结构、过程和结果的定性及定量指标对该项目进行描述。定性指标尤其评估区域网络的绩效,包括质量、培训、登记、治疗和研究小组的成果。应用的定量指标包括专业人员数量(每26,436名居民中有1名)、患者数量(每年每百万居民中有1,635名)、每年每百万居民的活动数量(6,183次医院探访和3,869次家访;1,863次会诊;14,748次咨询服务;11,539次协调会议;以及483次教育会议)、护理费用(每年224.2万欧元)和阿片类药物消费量(每年494,654个每日限定剂量)。在规划过程四年后以及投入运营三年后,RPCPEx提供了一个有效且高效的模式,融入了公共医疗体系,能够在项目的所有结构和层面提供全面覆盖、可及性、公平性和网络化。开发了若干结构和组织工具,其他公共卫生范围内的项目可以采用。姑息治疗的提供不应受患者地理位置、病情或疾病以及支付能力的限制,而应仅基于需求。该模式已在一个面临诸多挑战的地区成功实施了姑息治疗,这些挑战包括资源有限以及在地域广阔的地区人口分散。这些变量在发展中国家的许多农村地区也很常见,而该地区姑息治疗项目提供了一种灵活的方法,可以适应世界不同环境和国家的需求及资源。

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