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从定性角度理解精神科预先指示的个人和临床效用

Understanding the personal and clinical utility of psychiatric advance directives: a qualitative perspective.

作者信息

Kim Mimi M, Van Dorn Richard A, Scheyett Anna M, Elbogen Eric E, Swanson Jeffrey W, Swartz Marvin S, McDaniel Laura A

机构信息

School of Pharmacy, University of North Carolina-Chapel Hill, Chapel Hill, NC 27599-7360, USA.

出版信息

Psychiatry. 2007 Spring;70(1):19-29. doi: 10.1521/psyc.2007.70.1.19.

Abstract

Psychiatric advance directives (PADs) are legal tools that allow competent individuals to declare preferences for future mental health treatment when they may not be capable of doing so as a result of a psychiatric crisis. PADs allow individuals to maintain self-determination during times when they are most vulnerable to loss of autonomy and in need of assistance to make their preferences known and honored. This article describes the content of twenty-eight open-ended, semi-structured qualitative interviews of adults with PADs who have experienced psychiatric crises. The qualitative analysis revealed three major themes from the interviews: (1) PADs as tools for empowerment and self-determination, (2) limited knowledge of PADs among service providers; and (3) difficulties communicating PADs to inpatient staff. In general, many participants expressed enthusiasm of the implementation of PADs but concern regarding clinicians' general lack of awareness about them. Additionally, some consumers discussed discomfort in even mentioning that they had a PAD to clinicians for fear of a negative response from them, or some type of involuntary treatment during their hospitalization. However, participants consistently viewed PADs as a positive tool to promote autonomy with the potential to facilitate stronger patient-provider relationships. Therefore, when working with individuals in psychiatric crisis who have a PAD, and who have never before experienced a sense of control over their own treatment, clinicians must recognize the potential troubling disequilibrium this sense of control may engender. In sum, though the most significant challenges facing the implementation of PADs involve clinicians' familiarity with and education about PADs, much promise for the future growth of PADs lies in the benefits perceived by the patients.

摘要

精神科预嘱(PADs)是一种法律工具,允许有行为能力的个人在因精神疾病危机而丧失行为能力时,声明其对未来心理健康治疗的偏好。PADs使个人在最易丧失自主权且需要他人协助以表明并尊重其偏好的时期,能够维持自我决定权。本文描述了对28名经历过精神疾病危机的拥有PADs的成年人进行的开放式、半结构化定性访谈的内容。定性分析揭示了访谈中的三个主要主题:(1)PADs作为赋权和自我决定的工具;(2)服务提供者对PADs的了解有限;(3)向住院医护人员传达PADs存在困难。总体而言,许多参与者对PADs的实施表示热情,但对临床医生普遍缺乏认识表示担忧。此外,一些消费者甚至表示,因担心临床医生的负面反应或住院期间某种形式的非自愿治疗,而不愿向他们提及自己有PADs。然而,参与者始终将PADs视为促进自主权的积极工具,有可能促进更牢固的医患关系。因此,当与有PADs且此前从未对自己的治疗有过掌控感的精神疾病危机患者合作时,临床医生必须认识到这种掌控感可能带来的潜在困扰性失衡。总之,虽然PADs实施面临的最重大挑战涉及临床医生对PADs的熟悉程度和相关教育,但PADs未来发展的很大希望在于患者所感受到的益处。

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