Bernard André, Langille Morgan, Hughes Stephanie, Rose Caren, Leddin Desmond, Veldhuyzen van Zanten Sander
Division of Anesthesiology, Dalhousie University, Halifax, Canada.
Am J Gastroenterol. 2007 Sep;102(9):2070-7. doi: 10.1111/j.1572-0241.2007.01325.x. Epub 2007 May 19.
The Internet is a widely used information resource for patients with inflammatory bowel disease, but there is variation in the quality of Web sites that have patient information regarding Crohn's disease and ulcerative colitis. The purpose of the current study is to systematically evaluate the quality of these Web sites.
The top 50 Web sites appearing in Google using the terms "Crohn's disease" or "ulcerative colitis" were included in the study. Web sites were evaluated using a (a) Quality Evaluation Instrument (QEI) that awarded Web sites points (0-107) for specific information on various aspects of inflammatory bowel disease, (b) a five-point Global Quality Score (GQS), (c) two reading grade level scores, and (d) a six-point integrity score.
Thirty-four Web sites met the inclusion criteria, 16 Web sites were excluded because they were portals or non-IBD oriented. The median QEI score was 57 with five Web sites scoring higher than 75 points. The median Global Quality Score was 2.0 with five Web sites achieving scores of 4 or 5. The average reading grade level score was 11.2. The median integrity score was 3.0.
There is marked variation in the quality of the Web sites containing information on Crohn's disease and ulcerative colitis. Many Web sites suffered from poor quality but there were five high-scoring Web sites.
互联网是炎症性肠病患者广泛使用的信息资源，但关于克罗恩病和溃疡性结肠炎的患者信息网站质量存在差异。本研究的目的是系统评估这些网站的质量。
本研究纳入了在谷歌上使用“克罗恩病”或“溃疡性结肠炎”搜索词出现的前50个网站。使用以下方法对网站进行评估：(a)质量评估工具（QEI），该工具根据炎症性肠病各方面的特定信息为网站打分（0-107分）；(b)五分制全球质量评分（GQS）；(c)两个阅读年级水平评分；(d)六分制完整性评分。
34个网站符合纳入标准，16个网站因是门户网站或非炎症性肠病导向而被排除。QEI评分中位数为57分，有5个网站得分高于75分。全球质量评分中位数为2.0，有5个网站得分为4或5分。平均阅读年级水平评分为11.2。完整性评分中位数为3.0。
包含克罗恩病和溃疡性结肠炎信息的网站质量存在显著差异。许多网站质量较差，但有5个高分网站。
