Daoud Azhar, Al-Safi Saafan, Otoom Sameer, Wahba Lina, Alkofahi Ahmad
Department of Neuroscience, Faculty of Medicine, JUST, Irbid, Jordan.
Seizure. 2007 Sep;16(6):521-6. doi: 10.1016/j.seizure.2007.04.011. Epub 2007 May 31.
Social acceptances of people with epilepsy very often constitute a considerable problem for patients and their family. Nationwide opinion polls on the public knowledge and attitudes towards epilepsy have been reported from several countries. The purpose of this study is to assess the knowledge and attitudes of the Jordanian public towards epilepsy, which have not been verified before.
A total of 16,044 people (8158 males and 7886 females) living in different areas of Jordan were interviewed by invitation using standard four set questionnaire constructed from previous similar studies (Caveness and Gallup) that tested public knowledge and attitudes toward epilepsy. Two hundred and thirty senior students of the faculty of pharmacy at Jordan University of Science and Technology are involved in this study. Each student interviewed at least 50 individuals, aged 18 years or older, from their immediate community including family members, relatives, neighbors and friends by invitation. The interviews took place during the period from February to June of 2005.
Eighty-eight percent had read or knew about epilepsy, and 52.4% had witnessed an epileptic attack at least once in their life. From the people interviewed, 84.7% believed that the cause of epilepsy is a neurological disease, and 80.6% believe that the main symptom is brief loss of consciousness. The response of the younger participants and those with higher education were statistically significant more positive regarding the knowledge on causes and symptoms of epilepsy. More than 70% accepts shaking hands with people with epilepsy; they also believe that people with epilepsy are able to have children and to get high academic degrees. Less than 50% accepts letting their children play with children with epilepsy or employ people with epilepsy. Nine percent had negative attitudes, and believed that patients with epilepsy are insane and 88.5% objects the marriage of people with epilepsy to their sons or daughters. Approximately one third of the respondents believed that epilepsy is more dangerous than diabetes mellitus and hypertension.
The overall knowledge and attitudes of Jordanians towards epilepsy is relatively comparable with the results from Asian countries but more negative when compared with reports from the Western countries. Consequently, well-organized educational campaigns are needed to improve public perception about epilepsy.
癫痫患者的社会接纳情况往往给患者及其家庭带来相当大的问题。已有几个国家报道了关于公众对癫痫的认知和态度的全国性民意调查。本研究的目的是评估约旦公众对癫痫的认知和态度,此前尚未有过相关验证。
通过邀请,使用由先前类似研究(卡文内斯和盖洛普)构建的标准四组问卷,对居住在约旦不同地区的16044人(8158名男性和7886名女性)进行了访谈,该问卷测试了公众对癫痫的认知和态度。约旦科技大学药学院的230名高年级学生参与了本研究。每个学生通过邀请,至少采访了50名18岁及以上来自其直接社区的人,包括家庭成员、亲戚、邻居和朋友。访谈于2005年2月至6月期间进行。
88%的人读过或了解癫痫,52.4%的人一生中至少目睹过一次癫痫发作。在接受访谈的人中,84.7%的人认为癫痫的病因是一种神经系统疾病,80.6%的人认为主要症状是短暂的意识丧失。年轻参与者和受过高等教育者对癫痫病因和症状的认知在统计学上更积极。超过70%的人接受与癫痫患者握手;他们还认为癫痫患者能够生育并获得高学历。不到50%的人接受让自己的孩子与癫痫患儿玩耍或雇佣癫痫患者。9%的人态度消极,认为癫痫患者精神错乱,88.5%的人反对癫痫患者与自己的儿子或女儿结婚。约三分之一的受访者认为癫痫比糖尿病和高血压更危险。
约旦人对癫痫的总体认知和态度与亚洲国家的结果相对可比,但与西方国家的报告相比更消极。因此,需要开展组织良好的教育活动,以改善公众对癫痫的认知。