Gambhir S K, Kumar V, Singhi P D, Goel R C
Department of Pediatrics, Postgraduate Institute of Medical Education & Research, Chandigarh.
Indian J Med Res. 1995 Jul;102:34-8.
The public awareness, understanding and attitudes towards epilepsy were evaluated in a north Indian population in 1992 by personal interview method. The study revealed that 92 per cent of the respondents had read or heard about epilepsy. More than 55 per cent knew someone and had seen a case of seizure. Eighty five per cent of the respondents were not aware of the cause of epilepsy or had wrong beliefs. Eighteen and 15 per cent thought epilepsy to be a hereditary disorder and a form of insanity respectively. About 40 per cent of the respondents felt that children with epilepsy should not be sent to school and also objected to their children's contact with epileptics at school or at play. Two-thirds of the respondents objected to their children marrying a person who had ever had epilepsy. Twenty per cent were ignorant about the manifestation of epilepsy and an equal number were unable to recommend any therapy in case their relatives or friends had epilepsy. Fifty seven per cent did not know what kind of first aid should be given during the epileptic attack. Although the awareness of epilepsy among Indian people was comparable to that of individuals in Western countries, the attitudes of the Indians were much more negative. Better educated people belonging to higher occupational groups were less prejudiced against social contact and schooling of their children with epileptic children compared to low educational and occupational groups.
1992年,通过个人访谈的方法,对印度北部人群对癫痫的公众认知、理解和态度进行了评估。研究表明,92%的受访者读过或听说过癫痫。超过55%的人认识某个癫痫患者且见过癫痫发作的病例。85%的受访者不知道癫痫的病因或持有错误观念。分别有18%和15%的受访者认为癫痫是一种遗传性疾病和精神错乱的一种形式。约40%的受访者认为癫痫患儿不应上学,并且反对自己的孩子在学校或玩耍时与癫痫患者接触。三分之二的受访者反对自己的孩子与曾患癫痫的人结婚。20%的人对癫痫的表现一无所知,同样比例的人在亲戚或朋友患有癫痫时无法推荐任何治疗方法。57%的人不知道癫痫发作时应进行何种急救。尽管印度人群对癫痫的认知与西方国家的个人相当,但印度人的态度更为消极。与低教育和职业群体相比,高职业群体中受教育程度较高的人对癫痫患儿的社会接触和上学问题的偏见较少。