Soubhi Hassan
Department of Family Medicine, Sherbrooke University, Sherbrooke, Quebec, Canada.
Ann Fam Med. 2007 May-Jun;5(3):263-9. doi: 10.1370/afm.680.
Despite the increasing prevalence of chronic conditions and multimorbidities, the essential attributes of the structure and delivery of primary care continue to be defined in terms of disease-specific approaches and acute conditions. Effective improvements will require alternative ways of thinking about chronic care design and practice. This essay argues for an ecosystemic understanding of chronic care founded on a communal and a dynamic view of the response of the patient, family, and health professionals to chronic illness. The communal view highlights the cocreative nature of the response to illness and the need to integrate the skills and resources of all the participants; what and how the participants learn in the course of the illness become central to chronic care. The dynamic view draws attention to the unfolding of illness management activities over time and to the need to engage the illness at specific time points or recurring time intervals that have the potential for important change in the experience of the participants. Chronic care would then include design for community, with an emphasis on the patient and family as necessary participants in the health care team. It would also include design for emergent learning and practice whereby health professionals go beyond standardization of care processes to develop new ways to harness the participants' imagination and learn from the changing experience of illness. Health professionals would also learn to cultivate trust, communal engagement, and openness to experimentation that facilitate collective learning, and help sharpen the participants' responsiveness to the emergent.
尽管慢性病和多种疾病并存的情况日益普遍,但初级保健的结构和提供方式的基本属性仍继续以针对特定疾病的方法和急性病来界定。有效的改进将需要对慢性病护理设计和实践采用不同的思维方式。本文主张对慢性病护理有一种基于生态系统的理解,这种理解建立在患者、家庭和卫生专业人员对慢性病反应的共同且动态的观点之上。共同观点强调了对疾病反应的共同创造性质以及整合所有参与者的技能和资源的必要性;参与者在患病过程中学到了什么以及如何学习成为慢性病护理的核心。动态观点则关注疾病管理活动随时间的展开,以及在特定时间点或有规律的时间间隔介入疾病的必要性,这些时间点有可能使参与者的体验发生重要变化。慢性病护理随后将包括社区设计,强调患者和家庭作为医疗团队必要参与者的作用。它还将包括突发学习和实践设计,通过这种设计,卫生专业人员超越护理流程的标准化,开发新方法来激发参与者的想象力,并从不断变化的患病经历中学习。卫生专业人员还将学会培养信任、共同参与以及对促进集体学习的实验持开放态度,并帮助提高参与者对突发情况的反应能力。