Verhaeghe Sofie T L, van Zuuren Florence J, Defloor Tom, Duijnstee Mia S H, Grypdonck Mieke H F
Ghent University, Belgium.
Qual Health Res. 2007 Jul;17(6):730-43. doi: 10.1177/1049732307303242.
In this study, the authors examined the process that family members go through when they are confronted with traumatic coma. They conducted 24 semistructured interviews with 22 family members of 16 coma patients and analyzed the data using the constant comparative method as proposed by grounded theory. Hope was the most prominent theme. It can be described as keeping a possible positive outcome in mind in an uncertain situation, knowing that this outcome is unlikely to happen. Hope was found to evolve stepwise up and down, dependent on further events and information: big steps at first, smaller later on. Hope helps family members to keep going and to manage care for the patient and for each other. Family members were found to protect themselves against false or unjustified hope by seeking valid information. They alternate their moments of despair, and in their interactions they respect each other's hope.
在本研究中，作者考察了家庭成员面对创伤性昏迷时所经历的过程。他们对16名昏迷患者的22名家庭成员进行了24次半结构化访谈，并采用扎根理论提出的持续比较法对数据进行了分析。希望是最突出的主题。它可以被描述为在不确定的情况下心中怀有一个可能的积极结果，同时知道这个结果不太可能发生。研究发现，希望会根据进一步的事件和信息逐步起伏变化：起初变化幅度大，后来变小。希望帮助家庭成员坚持下去，并管理对患者以及彼此的照料。研究发现，家庭成员通过寻求有效信息来保护自己免受虚假或不合理希望的影响。他们在绝望时刻交替出现，并且在互动中尊重彼此的希望。
