Langelaan Maaike, de Boer Michiel R, van Nispen Ruth M A, Wouters Bill, Moll Annette C, van Rens Ger H M B
Department of Ophthalmology, VU University Medical Center, Amsterdam, and Elkerliek Hospital, Helmond, The Netherlands.
Ophthalmic Epidemiol. 2007 May-Jun;14(3):119-26. doi: 10.1080/09286580601139212.
Subjective evaluation of health-related quality of life (HRQoL) and health status is recognized as an important tool in the assessment and treatment of visually impaired patients. The aims of this study are to describe the generic HRQoL and health status of visually impaired patients and to compare the HRQoL of visually impaired patients with that of both the general population of the Netherlands and patients with other chronic conditions.
128 persons attending a rehabilitation centre for visually impaired adults completed the EuroQol questionnaire (EQ-5D). These patients' EQ-5D scores were compared with EQ-5D norms of the Dutch population and of patients with other chronic conditions; both sets of data were taken from the literature.
The average EQ-5Dindex score of the total study population was 0.73 (SD 0.22). Visually impaired patients reported more problems on every dimension of the EQ-5D than the general Dutch population. Only stroke patients and patients with chronic fatigue syndrome and reported more problems on every dimension of the EQ-5D than visually impaired patients.
Visual impairment has a substantial impact on the quality of life; compared with other chronic conditions, it seems to affect the HRQoL, spoiling the quality of life more than diabetes type II, coronary syndrome, and hearing impairments, but less than stroke, multiple sclerosis, chronic fatigue syndrome, major depressive disorder, and severe mental illness.
对健康相关生活质量（HRQoL）和健康状况进行主观评估被认为是评估和治疗视力受损患者的重要工具。本研究的目的是描述视力受损患者的一般HRQoL和健康状况，并将视力受损患者的HRQoL与荷兰普通人群以及其他慢性病患者的HRQoL进行比较。
128名在成人视力障碍康复中心就诊的患者完成了欧洲生活质量调查问卷（EQ-5D）。将这些患者的EQ-5D评分与荷兰人群以及其他慢性病患者的EQ-5D常模进行比较；两组数据均来自文献。
研究总人群的平均EQ-5D指数评分为0.73（标准差0.22）。视力受损患者在EQ-5D的各个维度上报告的问题比荷兰普通人群更多。只有中风患者、慢性疲劳综合征患者在EQ-5D的各个维度上报告的问题比视力受损患者更多。
视力障碍对生活质量有重大影响；与其他慢性病相比，它似乎会影响HRQoL，对生活质量的破坏程度超过II型糖尿病、冠状动脉综合征和听力障碍，但低于中风、多发性硬化症、慢性疲劳综合征、重度抑郁症和严重精神疾病。
