Ferrell B R, Rhiner M, Cohen M Z, Grant M
City of Hope National Medical Center, Duarte, CA.
Oncol Nurs Forum. 1991 Nov-Dec;18(8):1303-9.
While previous research has focused on patients' or professional caregivers' perspective of pain, this study describes cancer pain from the family caregivers' perspective. Chronic pain, which is associated with malignant disease, produces an intense burden on the patient as well as on the entire family. This qualitative study included 85 family caregivers of patients with cancer pain. Data were collected using an interview guide, and verbatim responses were analyzed for themes. The results identified four themes surrounding family descriptions of pain (anatomic descriptions, hidden pain, family fear and suffering, and overwhelming/unendurable pain) and three themes surrounding family experience of pain (helplessness, coping by denying feelings, and a wish for death). This study documents the important role that family members play in cancer treatment. If the number of patients receiving care in the home from family members continues to grow, this role will become even more important. Part I of this two-part paper focuses on the impact that cancer pain has on family caregivers and concludes that pain does have a tremendous impact on the family because it is perceived as a metaphor of progressive illness and death.
尽管先前的研究聚焦于患者或专业护理人员对疼痛的看法，但本研究从家庭护理人员的角度描述了癌症疼痛。与恶性疾病相关的慢性疼痛给患者以及整个家庭都带来了沉重负担。这项定性研究纳入了85名癌症疼痛患者的家庭护理人员。通过访谈指南收集数据，并对逐字记录的回答进行主题分析。结果确定了围绕家庭对疼痛描述的四个主题（解剖学描述、隐藏的疼痛、家庭恐惧与痛苦、难以承受/无法忍受的疼痛）以及围绕家庭疼痛经历的三个主题（无助感、通过否认感受来应对、希望死亡）。本研究记录了家庭成员在癌症治疗中所起的重要作用。如果在家中接受家庭成员护理的患者数量持续增加，这一角色将变得更加重要。这篇分为两部分的论文的第一部分聚焦于癌症疼痛对家庭护理人员的影响，并得出结论：疼痛确实对家庭产生了巨大影响，因为它被视为疾病进展和死亡的一种隐喻。
