Fox Fiona E, Rumsey Nichola, Morris Marianne
Centre for Appearance Research, Faculty of Applied Sciences, University of the West of England, Bristol, UK.
Dev Neurorehabil. 2007 Apr-Jun;10(2):133-41. doi: 10.1080/13638490701217594.
The failure of research to capture the qualitative experiences of young people who have chronic skin conditions means that their psychosocial needs are poorly understood. Using a grounded theory approach, this study facilitated group discussions between adolescents with psoriasis in order to rapidly identify themes about their support needs.
Three online focus groups were hosted in a real time forum. In total, 8 young people aged 11-18 years were recruited through the websites of psoriasis support organizations. Focus groups lasted an average of 1 hour and data was analysed using grounded theory techniques.
Appearance-related concerns are central to the experiences of young people with psoriasis. Participants constructed their individual struggle (It and Me) in physical, emotional, motivational and intellectual terms. A strong sense of Us developed as participants recognized the value of meeting peers with psoriasis. This enabled groups to blame Them for their negative social experiences.
The findings are discussed in the context of literature around adolescence and appearance. It is suggested that the experience of negative social encounters in adolescence may have long-term implications for appearance anxiety specifically and self-esteem generally. The potential of peer support to improve these outcomes is considered.
研究未能捕捉到患有慢性皮肤病的年轻人的质性经历，这意味着他们的心理社会需求未得到充分理解。本研究采用扎根理论方法，推动了患有银屑病的青少年之间的小组讨论，以便快速确定有关他们支持需求的主题。
在一个实时论坛中举办了三场在线焦点小组讨论。通过银屑病支持组织的网站，共招募了8名年龄在11至18岁之间的年轻人。焦点小组讨论平均持续1小时，并使用扎根理论技术对数据进行了分析。
与外貌相关的担忧是患有银屑病的年轻人经历的核心。参与者从身体、情感、动机和智力方面构建了他们个人的挣扎（“它”与“我”）。随着参与者认识到与患有银屑病的同龄人见面的价值，一种强烈的“我们”的意识形成了。这使得小组成员将他们负面的社交经历归咎于“他们”。
研究结果在围绕青春期和外貌的文献背景下进行了讨论。研究表明，青春期负面社交遭遇的经历可能对外貌焦虑特别是总体自尊有长期影响。同时考虑了同伴支持改善这些结果的潜力。
