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“不仅仅是你面前的一块皮肤”——对青少年湿疹和牛皮癣患者与医护人员相处经历的质性探索

'Not just a piece of skin in front of you'-a qualitative exploration of the experiences of adolescents with eczema and psoriasis with healthcare professionals.

作者信息

de Vere Hunt Isabella Joy, McNiven Abigail, Roberts Amanda, Parmar Himesh, McPherson Tess

机构信息

Medical Sciences Division, University of Oxford, Oxford, UK.

Nuffield Department of Primary Care Health Sciences, University of Oxford, Oxford, UK.

出版信息

BMJ Open. 2021 Jan 29;11(1):e041108. doi: 10.1136/bmjopen-2020-041108.

Abstract

BACKGROUND

There is little qualitative research in the UK focussing on adolescents' experience of their healthcare providers, and inflammatory skin conditions are a common heath problem in adolescence.

AIM

To explore the experiences of adolescents with eczema and psoriasis with healthcare professionals, and to distil the participants' key messages for their healthcare providers.

DESIGN

This is a secondary thematic analysis of interviews with adolescents with eczema or psoriasis.

PARTICIPANTS

There were a total of 41 text transcripts of interviews with young people with eczema or psoriasis who had given permission for secondary analysis; 23 of the participants had eczema, and 18 psoriasis. Participants were living in the UK at time of interview, and aged 15-24 years old.

RESULTS

We have distilled the following key messages from young people with eczema and psoriasis for healthcare providers: (1) address the emotional impact; (2) give more information, with the subtheme and (3) appreciate patient research. We identified the following eczema-specific themes: (ECZ-4) 'It's not taken seriously'; (ECZ-5) offer choice in treatment and (ECZ-6) lack of structure/conflicting advice. Two psoriasis-specific themes were identified: (PSO-4) feeling dehumanised/treat me as a person; and (PSO-5) think about how treatments will affect daily life.

CONCLUSION

This qualitative data analysis highlights the need for greater recognition of the emotional impact of skin disease in adolescence, and for more comprehensive provision of information about the conditions. We call for greater sensitivity and flexibility in our approach to adolescents with skin disease, with important implications for healthcare delivery to this group.

摘要

背景

在英国,很少有定性研究关注青少年对医疗服务提供者的体验,而炎症性皮肤病是青少年常见的健康问题。

目的

探讨青少年湿疹和银屑病患者与医疗专业人员的经历,并提炼参与者给医疗服务提供者的关键信息。

设计

这是一项对湿疹或银屑病青少年访谈的二次主题分析。

参与者

共有41份对患有湿疹或银屑病且已同意进行二次分析的年轻人的访谈文字记录;其中23名参与者患有湿疹,18名患有银屑病。参与者在接受访谈时居住在英国,年龄在15至24岁之间。

结果

我们从患有湿疹和银屑病的年轻人那里提炼出了以下给医疗服务提供者的关键信息:(1)关注情感影响;(2)提供更多信息,包括子主题;(3)重视患者研究。我们确定了以下特定于湿疹的主题:(ECZ - 4)“未被重视”;(ECZ - 5)提供治疗选择;(ECZ - 6)缺乏条理/建议相互矛盾。确定了两个特定于银屑病的主题:(PSO - 4)感觉被不当对待/把我当人看;(PSO - 5)考虑治疗对日常生活的影响。

结论

这项定性数据分析强调了需要更多地认识到青少年皮肤病的情感影响,以及更全面地提供有关病情的信息。我们呼吁在对待患有皮肤病的青少年时要有更高的敏感性和灵活性,这对为该群体提供医疗服务具有重要意义。

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