Tsuboi Keiko, Minegishi Yukiko, Harada Toshihide, Ishizaki Fumiko, Nitta Kohsaku
Department of Nursing, Hiroshima International University, 5-1-1, Hirokoshingai, Kure, Hiroshima 737-0112, Japan.
Hiroshima J Med Sci. 2007 Jun;56(1-2):11-8.
We evaluated the contents and characteristics of informed consent obtained by the primary care physician from a male patient with advanced cancer and his family, and clarified the influences of the informed consent on family function. This patient was diagnosed as having advanced cancer at the age of 46 years, underwent surgery/chemotherapy, but died after 4 months at the hospital. Semi-structured interviews were held with the elder daughter of the patient, and notes on the patient's disease, the course of treatment, his family's responses, and the informed consent obtained by the primary care physician were taken during the interview. The informed consent obtained by the primary care physician had the following characteristics: (1) The physician transmitted accurate and detailed information on the treatment methods, side effects, and prognosis by appropriate communication techniques with consideration for the feelings of the patient and his family, and proposed choices so that they could participate in the decision of treatment principles. (2) During the entire course, the primary care physician frequently visited the bedside and encouraged the patient and his family to express their feelings of anxiety and to ask questions, giving continuous emotional support. With the progression of the disease and explanation by the primary care physician, the patient and his family expressed and shared feelings such as grief and powerlessness and supported each another. Gradually, they began to show practical/adaptive coping behavior and could accept the patient's death. Appropriate informed consent obtained by the primary-care physician promoted the family function of this family.
我们评估了初级保健医生从一名晚期癌症男性患者及其家人那里获得的知情同意的内容和特点,并阐明了知情同意对家庭功能的影响。该患者在46岁时被诊断为患有晚期癌症,接受了手术/化疗,但在住院4个月后去世。我们对患者的长女进行了半结构化访谈,并在访谈过程中记录了患者的病情、治疗过程、其家人的反应以及初级保健医生获得的知情同意情况。初级保健医生获得的知情同意具有以下特点:(1)医生通过适当的沟通技巧,在考虑患者及其家人感受的情况下,传递了关于治疗方法、副作用和预后的准确详细信息,并提出了选择方案,以便他们能够参与治疗原则的决策。(2)在整个过程中,初级保健医生经常到床边探访,鼓励患者及其家人表达焦虑情绪并提问,给予持续的情感支持。随着病情的发展和初级保健医生的解释,患者及其家人表达并分享了悲伤和无助等情绪,并相互支持。渐渐地,他们开始表现出实际的/适应性的应对行为,并能够接受患者的死亡。初级保健医生获得的适当知情同意促进了这个家庭的家庭功能。