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法医学对生物样本库的使用会降低公众对医疗服务的信任吗?一些实证观察。

Will forensic use of medical biobanks decrease public trust in healthcare services? Some empirical observations.

作者信息

Bexelius Christin, Hoeyer Klaus, Lynöe Niels

机构信息

Department of Medical Epidemiology and Biostatistics, Karolinska Institutet, Stockholm, Sweden.

出版信息

Scand J Public Health. 2007;35(4):442-4. doi: 10.1080/14034940701280768.

DOI:10.1080/14034940701280768
PMID:17786809
Abstract

AIM

The authors tested the prevalent hypothesis that forensic use of medical biobanks has a negative impact on public trust in healthcare services.

METHOD

A questionnaire was sent to 1,184 inhabitant in the age group 20-80 years in Stockholm County, Sweden, in November 2005.

RESULTS

With a response rate of 68.4%, the results showed that a majority (88.1%) of the respondents thought that it would be acceptable for the police to gain access to genetic samples stored in relation to healthcare; 5.6% said no and 6.3% were uncertain. In the case of police access to medical biobanks, a minority (6.3%) indicated that this would have a negative impact on their trust, a larger proportion (37.8%) that it would influence their trust in the healthcare services positively, and 56% stated that it would not affect their trust at all.

CONCLUSION

The hypothesis tested appears to be unfounded. This should cause us to reconsider prevalent assumptions and current policies on the interface of medical and forensic genetics.

摘要

目的

作者对一个普遍的假设进行了验证,即医疗生物样本库在法医学上的应用会对公众对医疗服务的信任产生负面影响。

方法

2005年11月,向瑞典斯德哥尔摩郡1184名年龄在20至80岁之间的居民发放了调查问卷。

结果

回复率为68.4%,结果显示,大多数(88.1%)受访者认为警方获取与医疗保健相关存储的基因样本是可以接受的;5.6%的人表示不可以,6.3%的人不确定。对于警方获取医疗生物样本库的情况,少数人(6.3%)表示这会对他们的信任产生负面影响,较大比例(37.8%)的人表示这会对他们对医疗服务的信任产生积极影响,56%的人表示这根本不会影响他们的信任。

结论

所验证的假设似乎没有根据。这应该促使我们重新考虑关于医学与法医学遗传学交叉领域的普遍假设和现行政策。

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BMC Med Ethics. 2022 Mar 4;23(1):19. doi: 10.1186/s12910-022-00758-z.
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Forensic uses of research biobanks: should donors be informed?研究生物样本库的法医学用途:是否应告知捐赠者?
Med Health Care Philos. 2016 Mar;19(1):141-6. doi: 10.1007/s11019-015-9667-0.
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Public participation in genetic databases: crossing the boundaries between biobanks and forensic DNA databases through the principle of solidarity.
公众对基因数据库的参与:通过团结原则跨越生物样本库与法医DNA数据库之间的界限。
J Med Ethics. 2015 Oct;41(10):820-4. doi: 10.1136/medethics-2014-102126. Epub 2015 Jul 2.
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Biobanks and the phantom public.生物银行与虚幻的公众
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