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癌症患儿父母的情绪功能:治疗结束后连续缓解的头五年。

Emotional functioning of parents of children with cancer: the first five years of continuous remission after the end of treatment.

作者信息

Maurice-Stam Heleen, Oort Frans J, Last Bob F, Grootenhuis Martha A

机构信息

Psychosocial Department, Emma Children's Hospital/Academic Medical Center, University of Amsterdam, The Netherlands.

出版信息

Psychooncology. 2008 May;17(5):448-59. doi: 10.1002/pon.1260.

Abstract

OBJECTIVES

The aim of this study is to investigate parental emotional functioning during the first five years of continuous remission after the end of their child's treatment and to identify predictors of parental emotional functioning.

METHODS

Psychological distress and situation-specific emotional reactions were assessed in 122 mothers and 109 fathers from 130 families. Longitudinal mixed model analyses were performed to investigate to what extent generic and disease-related coping, family functioning and social support were predictive of parental emotional functioning over time.

RESULTS

Initial elevated levels of distress, disease-related feelings of uncertainty and helplessness returned to normal levels during the first two years after the end of treatment. Being more optimistic about the further course of the child's disease (predictive control) was correlated with lower psychological distress and less negative disease-related feelings, while more passive reaction patterns were correlated with higher psychological distress and more negative disease-related feelings.

CONCLUSIONS

Although in general the parents of children with successfully treated cancer showed adequate emotional resilience, support for these parents should not stop when treatment ends. Parents in need of help can be identified on the basis of their coping abilities.

摘要

目的

本研究旨在调查儿童治疗结束后的连续五年缓解期内父母的情绪功能,并确定父母情绪功能的预测因素。

方法

对来自130个家庭的122名母亲和109名父亲进行心理困扰和特定情境情绪反应评估。进行纵向混合模型分析,以调查一般应对方式和与疾病相关的应对方式、家庭功能和社会支持在多大程度上能预测父母随时间推移的情绪功能。

结果

治疗结束后的头两年,最初升高的困扰水平、与疾病相关的不确定感和无助感恢复到正常水平。对孩子疾病的进一步发展更乐观(预测性控制)与较低的心理困扰和较少的与疾病相关的负面情绪相关,而更消极的反应模式与较高的心理困扰和更多的与疾病相关的负面情绪相关。

结论

虽然总体而言,癌症治疗成功的儿童的父母表现出足够的情绪恢复力,但对这些父母的支持在治疗结束后不应停止。可以根据他们的应对能力识别出需要帮助的父母。

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