Tuffrey-Wijne I, McEnhill L, Curfs L, Hollins S
Division of Mental Health, St George's, University of London, UK.
Palliat Med. 2007 Sep;21(6):493-9. doi: 10.1177/0269216307082019.
Growing numbers of people with intellectual disabilities (ID) are in need of palliative care, but there is inequity of access to palliative care services for this group. This study investigates the issues and difficulties arising for palliative care staff in providing care for people with ID. Semi-structured interviews were conducted with 32 palliative care professionals in London. Factors affecting palliative care provision for people with ID included social issues (home situation and family issues), emotional and cognitive issues (fear, patient understanding, communication, cooperation and capacity to consent), problems with assessment, and the impact on staff and other patients. An underlying theme was the need to take more time and to build trust. Despite the challenges, many palliative care staff managed the care of people with ID well. The importance of collaboration with carers and ID services is highlighted. Further studies are needed to investigate how widespread the problems are.
越来越多的智障人士需要姑息治疗，但该群体在获得姑息治疗服务方面存在不平等现象。本研究调查了姑息治疗工作人员在为智障人士提供护理时出现的问题和困难。对伦敦的32名姑息治疗专业人员进行了半结构化访谈。影响为智障人士提供姑息治疗的因素包括社会问题（家庭状况和家庭问题）、情感和认知问题（恐惧、患者理解、沟通、合作和同意能力）、评估问题以及对工作人员和其他患者的影响。一个潜在的主题是需要花费更多时间并建立信任。尽管存在挑战，但许多姑息治疗工作人员仍很好地管理了对智障人士的护理。强调了与护理人员和智障服务机构合作的重要性。需要进一步研究以调查这些问题的普遍程度。
